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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Scott Adams replied to Jenny (AZ via TX)'s topic in Gluten-Free Foods, Products, Shopping & Medications7Does Dailymed.nlm.nih.gov site have filters for gluten?
Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct. -
- RMJ replied to Fayeb23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Waiting Gastroenterology review
To evaluate the TTG antibody result we’d need to know the normal range for that lab. Labs don’t all use the same units. However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. Y... -
- Bev in Milw replied to Jenny (AZ via TX)'s topic in Gluten-Free Foods, Products, Shopping & Medications7Does Dailymed.nlm.nih.gov site have filters for gluten?
Scott is correct….Thank you for catching that! Direct link for info of fillers. http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page of www.glutenfreedrugs.com Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in 2017. This makes it’s Drug List so old that it’s no longer relevant. Compa...- 1
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- Peggy M commented on Scott Adams's article in Gluten-Free Foods & Beverages1Are Potato Chips Gluten Free? (+Video)
There is another brand called "Uglies" which are certified gluten-free. They are my go-to potato chip! They make different varieties. The benefits of these chips are that they reduce food waste, support farmers and fight hunger by using imperfect potatoes.- 1
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By Scott Adams · Posted
Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct. -
To evaluate the TTG antibody result we’d need to know the normal range for that lab. Labs don’t all use the same units. However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet. If you went gluten free your intestines would start to heal, confusing any further testing,
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By Bev in Milw · Posted
Scott is correct….Thank you for catching that! Direct link for info of fillers. http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page of www.glutenfreedrugs.com Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in 2017. This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers & sources would need to be referenced, same amount effort as starting with current data on DailyMed That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17. List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten. Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of patent protection.). If so, multiple repackager-get bulk shipments from same supplier will all be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers frequently based on cost, or runs both gluten-free & non- items on same lines. No way to know without contacting company. While some I know have searched pharmacies chasing a specific brand, long-term solution is to find (or teach) pharmacy staff who’s willing help. When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free. Walked out when pharmacist said ‘How am I supposed to know…’ (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info? A serendipitous conversation with cousin in Mi was unexpectedly reassuring. She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels). I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’ Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as conscientious! For the Newbies…. SOLE purpose of fillers (possible gluten) in meds is to hold the active ingredients together in a doseable form. Drugs given by injection or as IV are always gluten-free! (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of pills .) Liquid meds (typically for kids)—still read labels, but could be an a simpler option for some products… -
So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few. I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t have corn based gluten free products
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We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten." How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this?
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