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Super Sensitive People

Non-scientific discussions for those who react to lower levels of gluten than most.


547 topics in this forum

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  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Doctors
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    3. - trents replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Test interpretations

    4. - knitty kitty replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Test interpretations

    5. - anya22 replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Test interpretations

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    • knitty kitty
      @Jmartes71, I understand how frustrated you feel.  I have been disappointed with the medical system myself.  Have you read my story in my blog?   What can we do to help you get better?   Nutritional deficiencies are common in Celiac disease.  Have you been checked for vitamin and mineral deficiencies?   Which supplements are you taking?
    • Mari
      hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form  you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married.      How to Request Copies of Medical Record from Kaiser Permanente Form - Fill Out and Sign Printable PDF Template | airSlate SignNow
    • trents
      It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated. 
    • knitty kitty
      Welcome, @anya22, Can you tell us more about your diet?   How much gluten containing foods did you eat?  What kinds of gluten containing foods did you eat?  What has your high calorie diet consisted of?   Some gluten containing foods contain less gluten than others.  Cakes and cookies may have less gluten than something like deep dish pizza.   Glad you're here!
    • anya22
      Thanks for the reply! I kept my diet the same continued to eat gluten.  I forgot to mention I have also failed to gain weight even with an high calorie diet since a young age
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