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- Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Fiber Supplement
I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease? Thanks!!! -
- kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9ttg iga high (646 mg/dl) other results are normal
Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease: fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches n... -
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- knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders4
Basic metabolic panel results - more flags
@Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency. Your symptoms seem really familiar. Malabsorption is a real thing that happens with Celiac. A multivitamin is not going to prevent nor correct nutritional deficiencies. Doctors do not recognize nutritional deficiency symptoms. Gastrointestinal Beriberi is not recognized... -
- trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9ttg iga high (646 mg/dl) other results are normal
What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease? Thanks!!! -
Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease: fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for.
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By knitty kitty · Posted
@Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency. Your symptoms seem really familiar. Malabsorption is a real thing that happens with Celiac. A multivitamin is not going to prevent nor correct nutritional deficiencies. Doctors do not recognize nutritional deficiency symptoms. Gastrointestinal Beriberi is not recognized often. Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed. Thiamine deficiency is found in anemia. Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine. Thiamine deficiency can cause high blood sugar which can cause cloudy urine. Dehydration can cause cloudy urine. I'm linking some PubMed articles. You see if your symptoms match. Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon! Just to rule it out. I'm very concerned. I'm linking some PubMed articles. You see if your symptoms match. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/ -
What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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Thanks so much. This is what I thought but really wanted a second opinion. I appreciate this.
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