-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
7,184 topics in this forum
-
- 11 replies
- 3.2k views
-
- 10 replies
- 3.1k views
-
- 8 replies
- 7.2k views
-
- 2 replies
- 1.2k views
-
- 3 replies
- 5.1k views
-
- 4 replies
- 1.6k views
-
- 9 replies
- 5.9k views
-
- 5 replies
- 2.4k views
-
- 4 replies
- 3k views
-
Celiac.com Sponsor (A10):
Celiac.com Sponsor (A10):
-
- 16 replies
- 8.3k views
-
- 23 replies
- 3.6k views
-
- 4 replies
- 1.8k views
-
- 11 replies
- 2.3k views
-
- 3 replies
- 1.8k views
-
- 5 replies
- 1.7k views
-
- 9 replies
- 2.6k views
-
- 16 replies
- 3.7k views
-
- 1 reply
- 1.8k views
-
- 4 replies
- 1.5k views
-
- 14 replies
- 2.6k views
-
- 1 reply
- 1.2k views
-
- 2 replies
- 1.3k views
-
- 15 replies
- 3.5k views
-
- 13 replies
- 3.7k views
-
- 18 replies
- 3.9k views
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8-M):
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3Increased intraepithelial lymphocytes after 10 yrs gluten-free
Celiac disease is the most likely cause, but here are articles about the other possible causes: -
-
- xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions
Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q -
- cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3Increased intraepithelial lymphocytes after 10 yrs gluten-free
Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result. I am interested to know, is your gastroenterologist concerned? Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous... -
- trents replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3Increased intraepithelial lymphocytes after 10 yrs gluten-free
Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Celiac.com Sponsor (A22):
-
Forum Statistics
-
Total Topics121.6k
-
Total Posts1m
-
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
0January 27, 2026 11:30 PM
Until
January 28, 2026 12:30 AM
-
0February 04, 2026 11:00 PM
Until
February 05, 2026 12:00 AM
-
0February 10, 2026 11:30 PM
Until
February 11, 2026 12:30 AM
-
Posts
-
By Scott Adams · Posted
Celiac disease is the most likely cause, but here are articles about the other possible causes: -
By xxnonamexx · Posted
Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q -
Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result. I am interested to know, is your gastroenterologist concerned? Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water. My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
-
Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts.
-
By Scott Adams · Posted
This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
-
