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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- knitty kitty replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11Waiting on biopsy after positive bloodwork, but also not really believing this is real
@Alibu, There may not be textbook intestinal damage in the early stage of Celiac Disease!!! Keep in mind that the endoscope used can only reach about a foot past the stomach, while the small intestines are twenty-two feet long! Damage can be patchy or out of reach of the scope. Early celiac disease may not show damage at all. Don't compare... -
- JulieB11 posted a topic in Coping with Celiac Disease0Gluten-Free Drinks
I was introduced to a new-to-me alcoholic beverage yesterday, a grapefruit radler. The bartender said it was sugar- and gluten-free and I trusted him. After I ordered a second drink, I had the good sense to look it up: it’s half beer! Usually wheat beer. BUT it gave me no symptoms—no bloating, fatigue, stool issues. Anyone else have this experience? -
- Capt Jules posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Quaker Instant Grits, gluten-free?
are these gluten free, I know that they don't devote space and there could be cross contamination but can they be eaten by celiac person? -
- trents replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms19Virus, celiac disease or both?
knitty kitty brought up something that also occurred to me. Namely, the reason you don't like bread and pasta may be that your body has been instinctively telling you, "this is harming me" and so you avoid it. Cake, on the other hand, has less gluten and lots of other goodies like sugar and butter and chocolate that mask what gluten there is.- 1
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- knitty kitty replied to Shining My Light's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms19
Virus, celiac disease or both?
@Shining My Light, While you're trying to decide on your next steps on your journey, I suggest you have a DNA test to look for Celiac genes. Your genes don't change, so you do not have to be eating gluten for it. If you have even one Celiac gene, it's more likely to be celiac disease, than NCGS. TTg antibodies do not occur in NCGS. There are...
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By knitty kitty · Posted
@Alibu, There may not be textbook intestinal damage in the early stage of Celiac Disease!!! Keep in mind that the endoscope used can only reach about a foot past the stomach, while the small intestines are twenty-two feet long! Damage can be patchy or out of reach of the scope. Early celiac disease may not show damage at all. Don't compare your tTg IgA numbers with others. Every lab uses their own range values. Tests from different labs are not using the same scale and shouldn't be compared with other people's numbers from a different lab. You've got the Celiac genes and the positive antibody test and the EMA test. Next step is a Gluten Free diet trial and look for improvement. ... -
I was introduced to a new-to-me alcoholic beverage yesterday, a grapefruit radler. The bartender said it was sugar- and gluten-free and I trusted him. After I ordered a second drink, I had the good sense to look it up: it’s half beer! Usually wheat beer. BUT it gave me no symptoms—no bloating, fatigue, stool issues. Anyone else have this experience?
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By Capt Jules · Posted
are these gluten free, I know that they don't devote space and there could be cross contamination but can they be eaten by celiac person? -
knitty kitty brought up something that also occurred to me. Namely, the reason you don't like bread and pasta may be that your body has been instinctively telling you, "this is harming me" and so you avoid it. Cake, on the other hand, has less gluten and lots of other goodies like sugar and butter and chocolate that mask what gluten there is.
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By knitty kitty · Posted
@Shining My Light, While you're trying to decide on your next steps on your journey, I suggest you have a DNA test to look for Celiac genes. Your genes don't change, so you do not have to be eating gluten for it. If you have even one Celiac gene, it's more likely to be celiac disease, than NCGS. TTg antibodies do not occur in NCGS. There are different amounts of gluten in different breeds of wheat. Wheat used for cookies and cakes and tortillas do not contain as much gluten as wheat used for bread and pizza crust. Look at the crumb in cakes and tortillas. There's only small bubbles. Gluten is in the matrix forming those bubbles. Compare those to the big bubbly holes in artisan...
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