-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Gluten-Free Recipes & Cooking Tips
Share your favorite recipes and cooking / baking techniques with others.
7,880 topics in this forum
-
- 0 replies
- 1.5k views
-
- 8 replies
- 102.1k views
-
- 8 replies
- 2.6k views
-
- 4 replies
- 1.7k views
-
- 16 replies
- 3.4k views
-
- 10 replies
- 2.4k views
-
- 17 replies
- 3.2k views
-
- 7 replies
- 11.7k views
-
- 1 reply
- 1.4k views
-
Celiac.com Sponsor (A10):
Celiac.com Sponsor (A10):
-
- 7 replies
- 2.2k views
-
- 10 replies
- 22.8k views
-
- 38 replies
- 12.5k views
-
- 3 replies
- 2k views
-
- 6 replies
- 1.7k views
-
- 4 replies
- 1.7k views
-
- 2 replies
- 1.7k views
-
- 1 reply
- 1k views
-
- 1 reply
- 3k views
-
- 12 replies
- 3.6k views
-
- 11 replies
- 3k views
-
- 3 replies
- 1.7k views
-
- 4 replies
- 3.8k views
-
- 45 replies
- 8.4k views
-
- 3 replies
- 1.5k views
-
- 4 replies
- 2.2k views
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8-M):
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease7Refractory Celiac disease - what to do
I have changed my toothpaste, and all hair/face/body care products to be gluten free. When I pick up prescription medications I ask for the full ingredients list to check for possible gluten sources, and don't take advil anymore because they cannot verify it to be gluten free. I am not sure how to change my diet further, but please let me know if you have... -
- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease7
Refractory Celiac disease - what to do
@trents Thank you, but it is still not clear to me what else other than celiac disease could be causing the combination of increased tTg-IGA and villous atrophy? when I asked my doctor about other possibilities, he said it is only celiac disease and gluten that could be causing this. Do you have any advice about how to approach my doctor about this, or what... -
- trents replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease7Refractory Celiac disease - what to do
When you say you have been in an "entirely gluten-free household" since January of 2025" does that include making sure you have checked that all medications, supplements and oral hygiene products are gluten free? I can also tell you that for some people, it can take several years for their antibody numbers to normalize. -
- trents replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease7
Refractory Celiac disease - what to do
I believe you are falsely concluding that elevated tTG-IGA/tTG-IGG levels can only be caused by celiac disease. I will offer a link here to an article outlining the various blood antibody tests that can be used to diagnose celiac disease. Each one them has less than a 100% specificity for celiac disease: -
- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease7
Refractory Celiac disease - what to do
thank you @trents ! I am reading through these, and it gives some clarity on the other possible causes of villous atrophy, but given that I still have high ttg levels, I am thinking that the most likely cause is still the celiac disease, and any treatments for other causes would not address the increased ttg levels and villous atrophy caused by that?
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.3k
-
Total Posts1m
-
-
Celiac.com Sponsor (A22):
-
Who's Online (See full list)
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
Posts
-
I have changed my toothpaste, and all hair/face/body care products to be gluten free. When I pick up prescription medications I ask for the full ingredients list to check for possible gluten sources, and don't take advil anymore because they cannot verify it to be gluten free. I am not sure how to change my diet further, but please let me know if you have any other ideas for potential hidden sources.
-
@trents Thank you, but it is still not clear to me what else other than celiac disease could be causing the combination of increased tTg-IGA and villous atrophy? when I asked my doctor about other possibilities, he said it is only celiac disease and gluten that could be causing this. Do you have any advice about how to approach my doctor about this, or what to do if it is not caused by celiac disease?
-
When you say you have been in an "entirely gluten-free household" since January of 2025" does that include making sure you have checked that all medications, supplements and oral hygiene products are gluten free? I can also tell you that for some people, it can take several years for their antibody numbers to normalize.
-
I believe you are falsely concluding that elevated tTG-IGA/tTG-IGG levels can only be caused by celiac disease. I will offer a link here to an article outlining the various blood antibody tests that can be used to diagnose celiac disease. Each one them has less than a 100% specificity for celiac disease:
-
thank you @trents ! I am reading through these, and it gives some clarity on the other possible causes of villous atrophy, but given that I still have high ttg levels, I am thinking that the most likely cause is still the celiac disease, and any treatments for other causes would not address the increased ttg levels and villous atrophy caused by that?
-
