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Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


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  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
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      Related issues

    2. - knitty kitty replied to science enthusiast Christi's topic in Coping with Celiac Disease
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      Sugar intolerance 10 years into gluten-free diet

    3. - Yaya replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Great Value Veggies cannot be trusted.

    4. - trents replied to colinukcoeliac's topic in Gluten-Free Restaurants
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      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    5. - Peggy M replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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  • Posts

    • Jmartes71
      No they just said stop all supplements two weeks before.Its so frustrating im not at all happy with my "care team",because im not being seen for my sibo infact my appointment was dropped, I even asked about it and they said Dr prescribed you meds and I stated yes but I again had a reaction.I feel bothersome. I need to find another gi but its useless because its going to be same thing around here.i just feel lost and in tbe medical file they are writing what ever and its really not ok. In fact i dont want to go unless they record the conversation. Yes its that bad.im only having  care and concern for my ms whose Not part of the same health association that pcp and gi are with.I will have to look into changing to another. Mayo clinic is great but its the celiac, sibo, ect and all related issues that need addressed but current " careteam says call when needed. No plans of scheduled dates
    • knitty kitty
      @science enthusiast Christi, It could be Small Intestinal Bacterial Overgrowth (SIBO).  Lots of people with Celiac develop it, especially if they eat a high carbohydrate diet.   Colonic bacteria crawl into the small intestine and ferment the excess carbohydrates and prebiotic fibers which causes lots of gas.   I changed my diet to the Autoimmune Protocol Diet (AIP), a Paleo diet, and supplemented with a B Complex and Benfotiamine, a form of Thiamine that helps heal the intestines and has antibacterial properties.  I had improvement within a few days.  The AIP diet starves out the carbohydrate loving SIBO bacteria and allows more beneficial bacteria a chance to repopulate. Hope this helps.
    • Yaya
      Yes, a rule I usually follow. Pict Sweet was always known to be gluten-free and after many years of use with no problems, it's easy to forget to look.    
    • trents
      "I am quite convinced this gluten is coming from exposure whilst eating out.  Small levels, that don't make me violently sick, but might give me a mild stomach upset." cristiana, are you saying this is your actual experience or are you speculating here?
    • Peggy M
      I have tried many Vit D. Solgad is one that did not cause any problems. I take 5000IU. Most of their vitamins are gluten-free certified but this is not.  They can be purchased direct from Solgar or Amazon.
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