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Coping with Celiac Disease
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Recent Activity
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- knitty kitty replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease49 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?
Thought I'd leave you the references: Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ "The early symptoms of TD are non-specific and may be easily attributed to any number of disease processes. Unrelenting or uncharacteristic fatigue, changes in mood with a tendency towards hyper-irritability... -
- dsfraley replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease49 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?
Thank you for these thoughts, Knitty. Trents: Yes. I would say we are taking it relatively light on his belly because it's been upset, so no heavy/excessive dairy, but he has had some cheese here and there. Not high quantities, however, and tests were negative for lactose intolerance.- 1
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- trents replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease49 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?
Is your son still consuming dairy? -
- knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff14
Diagnosed Marsh stage 3C in January 2026
Being low in Thiamine B1 can cause fingers and toes to be cold all the time. Thiamine deficiency affects body temperature regulation and sleep/wake cycles. Thiamine deficiency-induced disruptions in the diurnal rhythm and regulation of body temperature in the rat https://pubmed.ncbi.nlm.nih.gov/9804367/ -
- knitty kitty replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Nateral remedies
I found some information that may be helpful to you. https://www.nccih.nih.gov/health/echinacea#:~:text=However%2C some people have allergic,for short periods of time. And... Role of Echinacea in the management and prevention of acute respiratory tract infections in children: A systematic review of the evidence https://pubmed.ncbi.nlm...
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By knitty kitty · Posted
Thought I'd leave you the references: Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ "The early symptoms of TD are non-specific and may be easily attributed to any number of disease processes. Unrelenting or uncharacteristic fatigue, changes in mood with a tendency towards hyper-irritability and mood lability are common [4]. A sense of mental fuzziness and subtle decrements in memory are often reported, along with loss of appetite, sleep disturbances and/or gastrointestinal (GI) discomfort and dysmotility. Food intolerances and vomiting may develop as the deficiency progresses. Experimental [5] and case literature [6] suggest GI discomfort and dysmotility may be more prevalent early indications of TD than currently appreciated. A form of GI beriberi has been identified but is under-recognized [7]." and... Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ -
Thank you for these thoughts, Knitty. Trents: Yes. I would say we are taking it relatively light on his belly because it's been upset, so no heavy/excessive dairy, but he has had some cheese here and there. Not high quantities, however, and tests were negative for lactose intolerance.
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Is your son still consuming dairy?
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By knitty kitty · Posted
Being low in Thiamine B1 can cause fingers and toes to be cold all the time. Thiamine deficiency affects body temperature regulation and sleep/wake cycles. Thiamine deficiency-induced disruptions in the diurnal rhythm and regulation of body temperature in the rat https://pubmed.ncbi.nlm.nih.gov/9804367/ -
By knitty kitty · Posted
I found some information that may be helpful to you. https://www.nccih.nih.gov/health/echinacea#:~:text=However%2C some people have allergic,for short periods of time. And... Role of Echinacea in the management and prevention of acute respiratory tract infections in children: A systematic review of the evidence https://pubmed.ncbi.nlm.nih.gov/41234257/ Have you been checked for nutritional deficiencies? Vitamins are all natural. They are found in food. With Celiac disease, we may not absorb sufficient quantities needed. We cannot make vitamins, so we need to get them from foods and supplements while we're healing. Have you been checked for nutritional deficiencies? Ask for a Erythrocyte Transketolace Activity Assay. One of my favorite vitamins is Thiamine in the form Benfotiamine. It has really improved my gastrointestinal health. I took Benfotiamine to help get rid of my SIBO. Thiamine (Benfotiamine) help keep the SIBO under control. Dietary Vitamin B1 Intake Influences Gut Microbial Community and the Consequent Production of Short-Chain Fatty Acids https://pmc.ncbi.nlm.nih.gov/articles/PMC9147846/ Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
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