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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Ginger38 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13Confused About Results
No, I have not been checked for any other deficiencies or issues. No one will check these things since my EGD looked normal and there was no damage. I recently saw my gastro doc and it is just frustrating. I have diabetes, which is basically uncontrolled, and I keep being told, stop eating gluten free, because the gluten free diet is contributing to my diabetes... -
- Ginger38 commented on Jefferson Adams's article in Diagnosis, Testing & Treatment27
How Refining the Gluten Challenge May Help Improve Diagnostics for Celiac Disease
I have extreme sleepiness when I am eating gluten, especially regularly , like for the gluten challenge- celiac disease
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- Lotte18 commented on Scott Adams's article in Diagnosis, Testing & Treatment13Emerging Celiac Disease Treatments: Will Any Allow Gluten Consumption Again? (+Video)
Hi N00dnutt, Thanks for posting the Prevalence of Celiac Disease link. My takeaway is that the data is so chaotic I can't believe this 1% is even close to the real number. I also have a sibling who refuses to get tested. Just eats gluten free and doesn't see the value in bothering with doctors. And of course this just perpetuates a cycle in...- alternative
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- somethinglikeolivia replied to somethinglikeolivia's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12Am I celiac or not?
I will definitely be looking into this! Thank you so much!
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No, I have not been checked for any other deficiencies or issues. No one will check these things since my EGD looked normal and there was no damage. I recently saw my gastro doc and it is just frustrating. I have diabetes, which is basically uncontrolled, and I keep being told, stop eating gluten free, because the gluten free diet is contributing to my diabetes worsening. Then I am told oh just eat gluten free and you can go on insulin, which I don't feel like is a good answer either. So I end up eating gluten because they tell me it's okay or that I should bc of my diabetes. I am so sick today - physically mentally emotionally - just tired of this roller coaster ride. I am open for any realistic advice... I feel like I get more support here than in real life
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By somethinglikeolivia · Posted
I will definitely be looking into this! Thank you so much! -
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@trents You're right, thanks for pointing that out. On @somethinglikeolivia comment regarding potential ingesting or cross contamination; there is a product marketed in Australia as "GluteGuard" which is designed for just this scenario. It is not a defence for and is not recommended for use by full-blown celiac disease but, it helps those with GI. I'll be reading slower in future so I don't skim over the subject matter. Cheers. -
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