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Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


16,240 topics in this forum

  1. melie
    NoGluGirl
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  2. SunnyDyRain
    alyssasgabby
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  5. miles2go
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  6. Charlieswpa
    Ursa Major
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  7. Coltrane
    Judyin Philly
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  8. LoveBeingATwin
    DebbieInCanada
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  9. JerryK
    NoGluGirl
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  10. JerryK
    NoGluGirl
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  12. JennyC
    Generic
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  13. miles2go
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  14. Jenny1972
    NoGluGirl
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  15. JerryK
    Ursa Major
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  16. small fry
    Ursa Major
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  17. georgiagirl
    oceangirl
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  18. confused
    carriecraig
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  19. Mountain Mama
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  20. Jo.R
    TinkerbellSwt
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  21. angel42
    Guest
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  22. confused
    darlindeb25
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  23. BUGTWIG
    sansglutengrl
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  24. Jo.R
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  25. CMCM
    HawkFire
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  26. jesscarmel
    CMCM
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  27. JerryK
    sillyactsue
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  • Posts

    • Scott Adams
    • Scott Adams
      I’m really sorry you’re dealing with this, and what you’re describing is very real—even if other people can’t see it. Many kids and teens with celiac disease or other autoimmune conditions can have chronic joint and body pain, fatigue, and flares that come and go, which is exactly why it can look “fine one day and awful the next.” That doesn’t mean you’re faking anything. You deserve to be believed and supported, especially at school and at home. It may help to talk with a gastroenterologist or rheumatologist who understands autoimmune pain in teens, and to let a trusted adult help advocate for accommodations when you need them. Wanting to feel like a normal kid makes complete sense—and you’re not alone in feeling this way.
    • Scott Adams
      Don't  let one bad apple spoil the bunch,. as they say. Many health care professionals are doing their jobs the best they can, so it's important to try to work with them in a respectful manner, if when they might be wrong about something.
    • hjayne19
      Yes I saw. After reading the book I quickly became overwhelmed with that type of protocol. Unfortunately for me it seems unrealistic to eat with those guidelines. And I also find some of the information hard to understand and follow. I appreciate the recommendation though. 
    • lizzie42
      Any and all tips about safe places for my kids with celiac to eat! In the park and also in town. 
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