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Coping with Celiac Disease
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- Churro posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Celiac disease symptoms
Last month I got blood tests done. My iron level was at 205 ug/dL and 141 ug/dL iron binding capacity unsaturated, 346 ug/dl total iron binding capacity, 59 transferrin % saturation. My ferritin level was at 13 so I got tested for celiac disease last week. My tTG-IgA is <.05, DGP IgA is 4.9 and ferritin level is 9. My doctor didn't order other celiac disease... -
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- tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff4Celiac support is hard to find
Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for. -
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- pweidema commented on Scott Adams's article in Latest Research1How the Gut Microbiome Shapes Celiac Disease Risk (+Video)
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Last month I got blood tests done. My iron level was at 205 ug/dL and 141 ug/dL iron binding capacity unsaturated, 346 ug/dl total iron binding capacity, 59 transferrin % saturation. My ferritin level was at 13 so I got tested for celiac disease last week. My tTG-IgA is <.05, DGP IgA is 4.9 and ferritin level is 9. My doctor didn't order other celiac disease tests. In 2021 I was dealing with severe constipation and hemorrhoids. I'm no longer dealing with constipation. I still deal with hemorrhoids but only about once a week. Also, I've been dealing with very pale skin for at least 5 years. Do you think I have celiac disease?
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By tiffanygosci · Posted
Hi Cristiana! It's so nice to meet you! Thank you for the kind reply I am glad I live in a time where you can connect with others through the Internet. That is a mercy I am grateful for. -
By knitty kitty · Posted
In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/ -
By knitty kitty · Posted
Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids). This results in foods not being digested thoroughly. If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them. This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid. Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies. PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine. Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety. Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency. Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin. Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables. Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations. Yes, a child can be born with nutritional deficiencies if the parents were deficient. Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children. A person can struggle along for years with subclinical vitamin deficiencies. Been here, done this. Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms. Benfotiamine helps with improving intestinal health. A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also. -
By knitty kitty · Posted
@pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body burns its stored fat as a source of fuel. That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency. Correction of thiamine deficiency can help restore that fat pad. Best wishes for your recovery! Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.
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