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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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- Mari replied to Jmartes71's topic in Coping with Celiac Disease4Second chance
Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your health and keep healthy. -
- julie falco replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications2Schar's products contain wheat!
thank you that is good to know that it is safe for celiac people -
- Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease4Second chance
Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the... -
- Scott Adams replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications1British Coeliacs: Marks and Spencer's have launched a Gluten Free Colin the Caterpillar Cake.
Are you trying to make us in the USA jealous? 😉- 1
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- Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Gluten-Mimicking Proteins that can affect some Celiac individuals.
Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free g...
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Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your health and keep healthy.
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By julie falco · Posted
thank you that is good to know that it is safe for celiac people -
Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the gluten challenge! Why the hell would I eat Gluten when im Celiac coming to them for answers when my body is falling apart? Glutenfree since 1994. They did unnecessary colonoscopy KNOWING im glutenfree. A celiac specialist would know that would be pointless to do if not eating gluten and it was done!Im so angery with that hospital for not explaining celiac disease and withholding information, Downplaying my ailments , mental distress, causing more health issues, ect. All this could have been avoided If medical records were sent, when asked, explained and done properly. Im so angery.I do have the celiac dietitian on here in June and linked her up to my current health care yesterday, fingers crossed hopefully with that, the understanding of celiac is explained it's not just a food allergy will be understood.
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By Scott Adams · Posted
Are you trying to make us in the USA jealous? 😉 -
By Scott Adams · Posted
Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
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