Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Found Out - Little Bro Has A Brain Tumor

ShayFL

By ShayFL
in Introduce Yourself / Share Stuff

Recommended Posts

ShayFL Enthusiast
ShayFL
Posted

Hey everyone....I just found out my little bro has a brain tumor. It is on his pituitary and they suspect it is "benign" even though it has completely messed him up physically and caused depression. His hormones are a mess....so I dont see it as "benign". They are still running tests. They put him on medication immediately to "shrink" the tumor and it is making him quite ill.

He is young at 36 and has a wife and autistic 10 year old son who thinks the sun and moon revolve around "Daddy". He is such a great guy and it breaks my heart to see him go through this.

Prayers needed and greatly appreciated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nikki-uk Enthusiast
nikki-uk
Posted

I'm so sorry to hear this :(

My thoughts are with you.

Lisa Mentor
Lisa
Posted

So sorry about your brother. I hope he has a speedy recovery.

jerseyangel Proficient
jerseyangel
Posted

Oh my God, Shay--I'm so sorry to hear this. I will most definately keep your brother and his family in my thoughts and prayers. Keep us posted.

MELINE Enthusiast
MELINE
Posted

I am so sorry Shayfl.....I really don't know what to say. My prayers are with your brother and his family. You have to support him and be strong for him. I can't even imagine how painful this must be. Keep us informed about his progress. Iknow many people who went through really difficult situations and are healthy now (leuchemia...) so please have faith.

Mother of Jibril Enthusiast
Mother of Jibril
Posted

Hi Shay,

I'm SO sorry. That's a very difficult thing to go through at any time of the year. Hopefully the doctors can figure this out and he'll be on the road to much better health.

My prayers are with you and your brother!

lizard00 Enthusiast
lizard00
Posted

So sorry to hear that Shay!! I hope that the outlook is promising and that your brother recovers speedily!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Prayers sent!

mommida Enthusiast
mommida
Posted

My prayers are with your brather and family and friends.

Laura

ShayFL Enthusiast
ShayFL
Posted
  • Author

Thank you everyone!! I just spoke with him in depth. He has to take the medication until March when they will do another MRI to see if the tumor is "shrinking". It is not a secreting tumor, it is just putting pressure on the pituitary and causing hormonal defects.

Thank you for your prayers. We need em!!!

frec Contributor
frec
Posted

I'll be praying...

ang1e0251 Contributor
ang1e0251
Posted

I'm praying for major tumor shrinkage and a Christmas miracle! Please feel all the healing prayers sent his way.

flourgirl Apprentice
flourgirl
Posted

You have my prayers, too, Shay! Not only for a miraculous recovery and return to full good health, but for a happy, holy Christmas season for your family...especially for kids. Hang onto your hope, and circle yourselves with love....T

blueeyedmanda Community Regular
blueeyedmanda
Posted

My thoughts are with your family and do hope your brother well.....

MyMississippi Enthusiast
MyMississippi
Posted

My daughter-in-law just had surgery last month for the same thing---- She came thru the surgery fine----- And the tumor was benign just as they suspected.

Amazing how resiliant the human body is ---- and there is awesome medical technology and skill these days.

Will be praying for your brother.

luciddream928 Explorer
luciddream928
Posted

I'm so sorry, Shay. You and your family are in my thoughts and prayers!

Blessings,

Rachel

neesee Apprentice
neesee
Posted

I'm sorry Shay. I'm adding my prayers for your brother too!

neesee

home-based-mom Contributor
home-based-mom
Posted
Prayers needed and greatly appreciated.

You got 'em.

DingoGirl Enthusiast
DingoGirl
Posted

My prayers and hope also! :)

ksymonds84 Enthusiast
ksymonds84
Posted

My prayers are with you and your brother Shay.

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

Shay, I'm so sorry to hear this. My thoughts and prayers are with you and your brother and his family. Hang in there. I know this is hard on you too.

ShayFL Enthusiast
ShayFL
Posted
  • Author

Thank you again everyone!! It is the waiting that is so hard. March seems such a long way off. If he needs the surgery that will be another hurdle as he lives in a very rural part of GA. Tallahassee would be the closest for him. I know how important a good surgeon is!!

ravenwoodglass Mentor
ravenwoodglass
Posted

Shay, Hopefully the doctors feelings are right and this will be benign. I will keep you guys in my prayers.

henny Explorer
henny
Posted

best wishes for a quick, uncomplicated, and complete recovery!

have faith that this is treatable and thank goodness they found it!

cmom Contributor
cmom
Posted

My prayers are with you, Shay. My stepson had a brain tumor (and 2 cysts) when he was around 15. Once it was discovered, they operated within the week. He is fine now (age 36) and just got married Nov. 15. Have faith and think positive!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748
    Tony White
    Newest Member
    Tony White
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for food allergies and environmental allergies about 7 months before I started taking Naltrexone, so I don't think that is the cause for me, but that's interesting!  The main thing with the celiac thing that is throwing me off is these symptoms are lifelong, but I don't have intestinal damage to correlate with lifelong undiagnosed celiac disease.
    • trents
      Finding gluten free ingredients

      By trents · Posted

      Welcome to the forum, @Kara S! Warrior bread is a grain free bread product. Google it. There are commercial mixes available, I believe, Youtube videos and many recipes. 
    • knitty kitty
      Gluten related ??

      By knitty kitty · Posted

      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
    • Kara S
      Finding gluten free ingredients

      By Kara S · Posted

      Hello, my family is very new to Celiac Disease so forgive me for asking what Warrior Bread is and is there a recipe for it online?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.