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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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- Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications6Fiber Supplement
Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement. Thanks again -
- Wheatwacked replied to Larzipan's topic in Related Issues & Disorders36Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?
If you were wondering why milk protein bothers you with Celiac Disease. Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1 -
- Wheatwacked replied to Larzipan's topic in Related Issues & Disorders36
Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?
My TMJ ended when I lost a middle lower molar. I had an amalgam filling from youth (1960s) that failed and the tooth broke. I had what was left pulled and did not bother to replace it. My bite shifted and the TMJ went away. I just had to be careful eating M&M Peanuts because they would get stuck in the hole. -
- trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13ttg iga high (646 mg/dl) other results are normal
Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point... -
- Wheatwacked replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13
ttg iga high (646 mg/dl) other results are normal
So, since total iga 646, was high , was tTg iga even tested? It is not uncommon to test negative for antibodies and even biopsies to still have Celiac Disease. Many on this forum have gone 10 years testing negative and surviving multiple misdiagnoses before finally being diagnosed as celiac. If trial GFD after all the negative tests are concluded...
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Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement. Thanks again
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By Wheatwacked · Posted
If you were wondering why milk protein bothers you with Celiac Disease. Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1 -
By Wheatwacked · Posted
My TMJ ended when I lost a middle lower molar. I had an amalgam filling from youth (1960s) that failed and the tooth broke. I had what was left pulled and did not bother to replace it. My bite shifted and the TMJ went away. I just had to be careful eating M&M Peanuts because they would get stuck in the hole. -
Yes, I wondered about the units as well. That large number sure looked more like what we're used to seeing in connection with total IGA scores rather than TTG-IGA. The total IGA test is given to determine if you are IGA deficient. In the case of IGA deficiency, other IGA tests will b skewed and their scores cannot be trusted. Elevated total IGA can point to other health issues, some of them potentially serious, or it can mean nothing. But it doesn't look like you have celiac disease.
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By Wheatwacked · Posted
So, since total iga 646, was high , was tTg iga even tested? It is not uncommon to test negative for antibodies and even biopsies to still have Celiac Disease. Many on this forum have gone 10 years testing negative and surviving multiple misdiagnoses before finally being diagnosed as celiac. If trial GFD after all the negative tests are concluded brings improvement, will you continue to eat gluten and suffering since the doctor says you are not sick? Your list of symptoms, mostly unrelated to each other, certainly fits the pattern of celiac disease. Do you really have nine different diseases, all with cause unknown?
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