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Recent Activity
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- Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Blood results
Hi Thanks for answering so quickly. Not sure about any other blood tests, all I have is a copy of what my daughter sent to me. Hopefully she’ll get the biopsy soon cos she’s really anxious about the whole thing, but she tends to have a lot of anxiety anyway and has done for a long time -
- trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Blood results
Welcome to the forum, @Heatherisle! Yes, not uncommon for multiple celiac antibody tests to not agree. The Endomysial IGA was the first antibody test developed to detect celiac disease. It is expensive to run and has largely been replaced by the tTG-IGA. But some physicians, particularly those who have been in practice for awhile, still order the EMA... -
- Heatherisle posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
Blood results
Hi New to this so bear with me!!! My daughter was told a few years ago she probably had IBS but been feeling generally worse lately Recent IgA TTG Ab blood test indicative of coeliac at 19 U/ml but Endomysial IgA Abs negative. Awaiting appointment for biopsy , so was wondering if anyone else has had these differing results. Thank you -
- lehum replied to lehum's topic in Gluten-Free Foods, Products, Shopping & Medications22nuts.com -- no longer Celiac safe?
The article was shocking - and horrifying - to read. For me it’s a good argument to cook as many fresh foods as possible. I personally can’t do grain free because I lose weight too quickly and don’t feel full, but I will be sticking to companies I trust like Lundberg for rice. I live in Germany and thankfully, labeling here is more transparent and m... -
- Scott Adams replied to lehum's topic in Gluten-Free Foods, Products, Shopping & Medications22nuts.com -- no longer Celiac safe?
Yes, it is unfortunate that the GFCO seems to have a policy that allows companies that it certifies to lower their guard the longer that they've had their certification. After jumping though the harder GFCO testing requirements for long enough they seem to "rubber stamp" companies and allow them to keep their certification with much less testing going forward...
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Posts
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Welcome to the forum, @Heatherisle! Yes, not uncommon for multiple celiac antibody tests to not agree. The Endomysial IGA was the first antibody test developed to detect celiac disease. It is expensive to run and has largely been replaced by the tTG-IGA. But some physicians, particularly those who have been in practice for awhile, still order the EMA. It's a good test. Was there a "total IGA" test run to check for IGA deficiency?
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By Heatherisle · Posted
Hi New to this so bear with me!!! My daughter was told a few years ago she probably had IBS but been feeling generally worse lately Recent IgA TTG Ab blood test indicative of coeliac at 19 U/ml but Endomysial IgA Abs negative. Awaiting appointment for biopsy , so was wondering if anyone else has had these differing results. Thank you -
The article was shocking - and horrifying - to read. For me it’s a good argument to cook as many fresh foods as possible. I personally can’t do grain free because I lose weight too quickly and don’t feel full, but I will be sticking to companies I trust like Lundberg for rice. I live in Germany and thankfully, labeling here is more transparent and more trustworthy than it appears to be in the U.S. these days (where I’m also originally from). I am so sorry to hear this! May you heal quickly. ❤️
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By Scott Adams · Posted
Yes, it is unfortunate that the GFCO seems to have a policy that allows companies that it certifies to lower their guard the longer that they've had their certification. After jumping though the harder GFCO testing requirements for long enough they seem to "rubber stamp" companies and allow them to keep their certification with much less testing going forward. To me this is like having a restaurant where you train the staff one time about how do handle gluten-free foods, and do the training less and less over time, even though you might have high turnover in the industry. People in big food production and supply companies come and go, just like in restaurants, and it's important never to lower your guard. -
By Scott Adams · Posted
There are tons of ingredients that can cause IBS-like issues in anyone, but especially in newly diagnosed celiacs, and it would probably make sense for us to do an article on that topic, but here is an article that might be helpful:
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