Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


16,224 topics in this forum

  1. Googles
    • 6 replies
    • 1.6k views
  2. Ester41
    Scott Adams
    • 14 replies
    • 5.6k views
  3. surfer
    Austin Guy
    • 1 reply
    • 1.1k views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. pondy
    T.H.
    • 3 replies
    • 1.3k views
  6. tennisman
    • 6 replies
    • 2.4k views
  7. pondy
    annegirl
    • 14 replies
    • 4.8k views
  8. PadmeMaster
    • 2 replies
    • 1.6k views
  9. sreese68
    Sarah Alli
    • 4 replies
    • 8.4k views
  10. kellynolan82
    kareng
    • 45 replies
    • 14.2k views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. lovesaceliac
    kareng
    • 2 replies
    • 1.3k views
  13. Caremate
    lilu
    • 5 replies
    • 1.2k views
  14. Newbee
    jebby
    • 3 replies
    • 1.4k views
  15. CNV2855
    Jenniferxgfx
    • 3 replies
    • 1.6k views
  16. GSDguy08
    shadowicewolf
    • 6 replies
    • 3.3k views
  17. speedy2056
    • 12 replies
    • 1.9k views
  18. NoodleUnit
    kareng
    • 16 replies
    • 9.2k views
  19. fire-chickens
    lynnelise
    • 8 replies
    • 1.8k views
  20. pgrovetom
    T.H.
    • 6 replies
    • 2k views
  21. starrytrekchic
    Guest
    • 6 replies
    • 3.9k views
  22. sleer
    lizdehart
    • 10 replies
    • 2.7k views
  23. CourtneyLee
    eatmeat4good
    • 10 replies
    • 3.5k views
  24. shadowicewolf
    StephanieL
    • 9 replies
    • 1.7k views
  25. Maharlow
    BethM55
    • 1 reply
    • 3.6k views
  26. BethM55
    • 2 replies
    • 1.3k views
  27. GFshay
    cahill
    • 1 reply
    • 1.3k views

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,129
    • Most Online (within 30 mins)
      7,748

    kkaayy
    Newest Member
    kkaayy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I’m so sorry you’re going through this—it sounds like your body is sending a clear signal that gluten is a major trigger for your Hashimoto’s. The dramatic spike in your anti-TPO (from 50 to 799!) and the severe symptoms you’re experiencing suggest a strong immune reaction, even if celiac testing wasn’t done earlier. While a formal diagnosis would clarify cross-contamination risks, continuing the challenge may not be worth the damage to your thyroid and quality of life, especially since you already know gluten worsens your antibodies and symptoms. If you need answers, you could discuss genetic testing (HLA-DQ2/DQ8 genes) with your doctor—this can rule out celiac predisposition without a gluten challenge. For now, prioritizing your health by quitting gluten again (strictly, given your sensitivity) and supporting gut healing (like probiotics, L-glutamine, or zinc carnosine) might be the wisest path. Your thyroid will thank you!
    • trents
      Well then, I'd say he's making excellent progress. It can take some time for antibody numbers to normalize. Even though new antibodies are no longer being produced, it takes a while for the old ones to be disposed of. Make sure you keep an eye on the alkaline phosphatase levels. It is probably true that is tied to his adolescent growth spurt but it's worth tracking. Thirteen years of elevated liver enzymes was what eventually led to my celiac disease diagnosis. But I was 50 years old by that time and it was my ALT and AST that were mildly elevated all that time, not my alk phos. I just found out last week from an ultrasound that my liver is 20% larger than normal and I'm hoping that is a legacy effect. I have more testing lined up. 
    • CeliacMom79
      Hi. Sorry, his previous levels were >250 and we do not know how high they were. So yes, "off the chart". By 'detectable' I just meant that at 234 we now actually have a number as a baseline that we can measure future labs against. All his other liver test functions have been normal.  Just the elevated ALP. Thank you.
    • NoGlutenCooties
      Hi all I'm looking for a safe place to eat in Wilmington, DE. Any ideas? Thanks Jenny
    • trents
      Welcome to the forum, @CeliacMom79! Not sure what you mean when you say you are pleased that his ttg levels are now at "detectable levels"? Earlier in your narrative you said they were originally above 250. Was 250 the upper limit of the scale that was used, such that you actually don't know how high they were originally, i.e. "off the charts"?  Were his other liver test functions (ALT, AST) originally elevated?
×
×
  • Create New...