-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
16,223 topics in this forum
-
- 5 replies
- 1.8k views
-
- 9 replies
- 2.3k views
-
- 2 replies
- 1.1k views
-
- 14 replies
- 2.6k views
-
- 3 replies
- 1.7k views
-
- 9 replies
- 2k views
-
- 6 replies
- 1.4k views
-
- 6 replies
- 11.7k views
-
- 12 replies
- 2.2k views
-
Celiac.com Sponsor (A10):
Celiac.com Sponsor (A10):
-
- 11 replies
- 2.2k views
-
- 2 replies
- 1.9k views
-
- 14 replies
- 2.1k views
-
- 5 replies
- 8.1k views
-
- 5 replies
- 1.4k views
-
- 69 replies
- 8.2k views
-
- 2 replies
- 1.2k views
-
- 3 replies
- 938 views
-
- 5 replies
- 1.5k views
-
- 7 replies
- 2.6k views
-
- 23 replies
- 3.5k views
-
- 2 replies
- 870 views
-
- 16 replies
- 3.8k views
-
- 3 replies
- 1.2k views
-
- 5 replies
- 1.6k views
-
- 11 replies
- 7.2k views
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8-M):
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- nanny marley replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Help needed
Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle ,... -
- Scott Adams replied to mermaidluver22's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Some inflammation in ileum with celiac?
It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains ele... -
- mermaidluver22 replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Help needed
hi, how are u now? any answers? -
- mermaidluver22 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Some inflammation in ileum with celiac?
I have biopsy-confirmed celiac disease and have been strictly gluten-free, but my tTG-IgA is still elevated, so I know I'm still healing. I recently had a capsule endoscopy that showed small erosions and inflammation only in the distal ileum — nothing in the upper small intestine. My GI isn’t calling it Crohn’s yet because biopsies showed only mild, non-... -
- trents replied to max it's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Hi Ya All, Dr. just. Told me I have one celiac marker. I have been taking multiple blood test for thin Dr for years. Why couldn’t he have mentioned this! Anyway my functional med practitioner
Welcome to the forum, @max it! By "one celiac marker" do you refer to a genetic marker or a blood antibody test result?
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.3k
-
Total Posts1m
-
-
Celiac.com Sponsor (A22):
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
0July 21, 2025
Until
July 22, 2025
-
Posts
-
By nanny marley · Posted
Hi still the same unfortunately, they had to cancel my colonoscopy due to my trapped nerve , I'm awaiting some kind of scan , it was the nurses who told me to refuse and asked a docter , and I was told to cancel and go back to my consultant , I think because my sciatic nerve is compressed between my herniated discs , the prep was enough I could handle , but the colonoscopy itself , they advised me to seek something different ,due to the position I had to be in and the movements , so I will update Wen I know more , thankyou for asking appreciated 🤗 -
By Scott Adams · Posted
It sounds like you're navigating a complex situation with your celiac disease, and it’s understandable to feel confused by the GI world! While celiac disease typically affects the duodenum and proximal small intestine, it’s possible for inflammation to extend to the ileum, especially in cases of more severe or longstanding damage. Since your tTG-IgA remains elevated despite a strict gluten-free diet, this could indicate ongoing healing or subtle gluten exposure. The ileal inflammation might still be related to celiac, though it’s good your doctor is ruling out other conditions like Crohn’s, given the nonspecific biopsy findings. Some people with celiac do report ileal involvement, particularly if... -
-
By mermaidluver22 · Posted
I have biopsy-confirmed celiac disease and have been strictly gluten-free, but my tTG-IgA is still elevated, so I know I'm still healing. I recently had a capsule endoscopy that showed small erosions and inflammation only in the distal ileum — nothing in the upper small intestine. My GI isn’t calling it Crohn’s yet because biopsies showed only mild, non-specific inflammation with no chronic features. Has anyone experienced celiac impacting their ileum as well? the gi world is so confusing! thank u ❤️ -
Welcome to the forum, @max it! By "one celiac marker" do you refer to a genetic marker or a blood antibody test result?
-
