Jump to content



Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.

    💬

    • Sign In
    • Sign Up

Celiac Disease & Gluten-Free Diet Blogs

Tried Carbs Again

So I tried to eat some carbs again and started with a half cup of black beans. Well seems after eating just fats, protein and very small amounts of carbs from vegetables my body does not know what to do with carbs. I lost 3lbs of weight from waking up on a empty stomach and eating them with my 8 egg omelette, then eating a chopped salad with eggs, hemp seeds, almonds in it for lunch then weighed in at my afternoon snack time weighing 4lbs less then I would normally at that time and 3 lbs less th

Ennis_TX

Ennis_TX

Why did She have sorghum flour?

I recall back when I was in denial of having celiacs years ago. I was at my grandmas and she had a old container of flour. I tried a bit of it on a whim, had a earthly flavor tad deep and off and I assumed it was old flour from god knows when. But I did not have a reaction to it, this made me think perhaps it was not gluten but the other crap they put in flours now day. But I kept having gluten reactions and eventually gave up and took about a year before I learned what that stuff was. I was lat

Ennis_TX

Ennis_TX

Treating myself

I have broken down and gotten a ice cream machine in the past 4 months and a bunch of lor ann oils ice cream flavorings. I found making a protein pudding mix flavoring it and loading it in for a after dinner bowl to make me pure pleasure and not care about breads/carbs.     I normally start with a almond milk base, add a fat like almond butter, coconut flour, a sweetener like swerve or xylitol, and a heating it up and mixing in a thickening agent like fruit pectin, knoxx gelatin, chia seeds, or

Ennis_TX

Ennis_TX

Savory Foods Recalls Pork Rinds Due To Misbranding and Undeclared Wheat

Savory Foods, a Portsmouth, OH establishment, is recalling approximately 32,928 pounds of pork rind products due to misbranding and an undeclared allergen, the U.S. Department of Agriculture’s Food Safety and Inspection Service (FSIS) announced today. The product contains wheat, a known allergen which is not declared on the product label. The Hot and Spicy Pork Rind items were produced from August 11, 2015 to August 31, 2016. The following products are subject to recall: [View Labels (PDF

Scott Adams

Scott Adams

The Autoimmune Fix by Dr. Tom O’Bryan

How to Stop the Hidden Autoimmune Damage That Keeps You Sick, Fat, and Tired Before It Turns Into Disease. On September 20th, with the launch of Dr. Tom O’Bryan’s first book, an entirely new conversation will begin around Autoimmune Disease. THE AUTOIMMUNE FIX: How to Stop the Hidden Autoimmune Damage That Keeps You Sick, Fat, and Tired Before It Turns Into Disease (Rodale Books; ISBN: 978-1-62336-700-8; September 2016; $26.99; 352 pages) highlights the new world of predictive autoimmunity

Dr. Tom O'Bryan

Dr. Tom O'Bryan

'What's With Wheat' Documentary

I am proud to be part of this video: 'What's With Wheat' documentary, the silent global growing epidemic of gluten intolerance! There is a free Online Screening available tomorrow – More and more people are diagnosed with coeliac and non-coeliac gluten sensitivity than every before! You have to ask the question, WHY! Cyndi O'Meara, nutritionist and founder of Changing Habits, went on a global quest to find out the reason why! She could not understand why after millions of

Dr. Rodney Ford M.D.

Dr. Rodney Ford M.D.

Someone has it worse.....

I've been in a really bad place this week. I've struggled a lot with the Celiac diagnosis. I was doing better and then this week hit me like a ton of bricks.... I think because I officially transition to gluten-free on Monday..... I am scared. Scared of losing the convenience I'm used to. Scared of losing the food I'm used to and love. I don't care how it sounds.... I'm fat because I eat bad. I like bad food. I no longer will be able to eat that food. Not just for a short time-not just for a yea

MrsChoplin

MrsChoplin

Celimmune Commences First-Ever Dosing with AMG 714 in Celiac Disease

Celimmune LLC, a clinical development-stage immunotherapy company focused on treating and preventing immune-mediated diseases, announced that it has dosed the first patient in its Phase 2 clinical study for AMG 714 in celiac disease. AMG 714 is an investigational anti-IL-15 monoclonal antibody being studied for the treatment of gluten-free diet non-responsive celiac disease (NRCD) and refractory celiac disease Type II (RCD-II). The celiac disease study is being conducted by several expert academ

Scott Adams

Scott Adams

ImmunogenX Acquires the Assets of Alvine Pharmaceuticals

Celiac.com 03/16/2016 - ImmunogenX, a biopharmaceutical company focused on the diagnosis and treatment of autoimmune and gastrointestinal diseases, today announced that it has completed the acquisition of the non-cash assets of Alvine Pharmaceuticals. This includes the Latiglutenase (formerly known as ALV003 and renamed IMGX-003), an orally administered mixture of two recombinant gluten-specific proteases that degrades gluten proteins into small physiologically irrelevant fragments. The technolo

Scott Adams

Scott Adams

Maggi Chicken Bouillon Cubes Recalled Due to Undeclared Wheat

According to Hannaford's Web site: "This product contains undeclared wheat flour as an ingredient. The presence of an undeclared wheat ingredient poses a potential health hazard." Maggi Chicken Bouillon Tablets, 5.08 oz., UPC # 28000-11567 Maggi Chicken Bouillon Tablets, 2.43 oz., UPC # 28000-24795 Obviously since the product contains wheat flour it would not be gluten-free and anyone with celiac disease or gluten sensitivity should heed this warning.

Scott Adams

Scott Adams

Hain Celestial Seasoning Recalls Herbal Tea Due to Gluten

Hain Celestial Seasoning is recalling Celestial Seasonings Roastaroma Herbal Tea due to gluten containing ingredients. The labeling conflict was due to the fact that it contains barley as an ingredient, but is labeled "Gluten-Free". The affected products include: Celestial Seasonings Roastaroma Herbal Tea Lot code - Best Before 20DEC17 Pack size - 6 retail units (20 count) per case. Best Before 02DEC17 Retail UPC 070734-050138. Source: fda.gov

Scott Adams

Scott Adams

Two examples about the stupidity of the doctors

Both examples were originally posted on another forum, where I discuss a topic of my initiated. 1. Are doctors able to perform a proper differential diagnosis?  An example about the incompetence of human brain would be medicine. Did you know that the average time that goes for diagnosing Sjogren's Syndrome (an autoimmune disease most often prevalent in middle aged women) is 7 years!? Those poor women suffer years with dry eyes, mouth, and

HayInNeedleStack

HayInNeedleStack

Apparently I'm Mycroft Holmes

The last blog entry was about my GI not having a clue what's wrong with me. I was angry, and even more angrier when another senior GI said the exact same thing, although he did say it could be IBS. I loudly thought "f*ck you", because I gave him my whole list of symptoms, and expressed my solemn concern that this list contains A LOT more symptoms than just now cured diarrhea and still present pain in the stomach, which btw is minor. Here is the list: brain fog

HayInNeedleStack

HayInNeedleStack

ARZ Fine Foods Brand Ground Cumin Recalled due to Undeclared Wheat

Ground cumin manufactured by ARZ Group Ltd. has been recalled in Canada by the Canadian Food Inspection Agency because it contains wheat. Recall date: December 31, 2015 Reason for recall: Allergen - Gluten, Allergen - Wheat Hazard classification: Class 3 Company / Firm: ARZ Group Ltd. Distribution: Ontario, Quebec Extent of the distribution: Retail Reference number: 10275 Brand Name: ARZ Fine Foods Common Name: Ground Cumin Size: 55 g Code(s) on Product: 17115

Scott Adams

Scott Adams

cross country

When I was in cross country we would travel to compete and it was a huge hassle to find something I could eat. Everyone always wanted fast food or pizza. Well i made it through by packing food  or just being hungry until i could find something. Well tomorrow I have a banquet and they are serving pizza.. so again I get to be asked why I'm not eating and "just get over it" , "are you doing this to loose weight" Im tired of people thinking I'm just not eating gluten to get slim! ?

DevynJoy

DevynJoy

Dates

I know that I'm a little young to be going on dates. But what can I say, it's my senior year and its time to have fun. Ive been asked on quite a few dates most of which I have turned down (they were not great people), the few I have gone on were terrible. Most people don't realize how hard it is to find somewhere to eat out when you can't eat anything. They always try to take me to certain places which I can't eat, like Panera bread. They always say " its not going to kill you" "you'll be fine"

DevynJoy

DevynJoy

Hiding The Symptoms

My sister and I joke around a lot about the creative ways we hide our symptoms from the world. From carrying strong ass perfume, or wearing pads in our shirts, we create laughter and ideas that would send any normal person walking away shaking their head. But at what point does hiding your symptoms take every inch of strength from you? I realized just how weak I was when my symptoms showed on a place I couldn’t hide… My lips. I have been diagnosed with eczema for a while now and I have foun

Nicki Raeleen

Nicki Raeleen

Medication.. Medication.. Medication

Medication….. What a dreaded word, surrounded by stigmas and scapegoats. I have been on over 35 prescription medications since I was 13. I am now 19, almost 20, and the list seems to just keep growing. Between My eczema, DH, allergies, and now my un-responsive celiac, I have been a mess of a teenager; but seemed to have grown quickly into an adult. A lot parents are quick to take their children to the doctor, pop pills in their mouth, rub creams on their asses, and expect a result; but that is n

Nicki Raeleen

Nicki Raeleen

Joseph Epstein Food Enterprises Recalls Gluten-Free Turkey Meatball Products Due to Excessive Gluten

Joseph Epstein Food Enterprises, Inc., an East Rutherford, N.J. establishment, is recalling approximately 190 pounds of turkey meatball products due to misbranding, the U.S. Department of Agriculture's Food Safety and Inspection Service (FSIS) announced today. The label declares the product as "gluten-free," a false negative claim. The Mama Mancini's gluten-free turkey meatball items were produced on Oct. 19, 2015. The following products are subject to recall: [View Labels] 22-oz. ca

Scott Adams

Scott Adams

Finding The Right Doctor

After my GI doctor told me nothing was wrong with my blood test, even though i was feeling very ill, i knew it was time for a change. This doctor had recommended me to eat products that had wheat and gave me samplers of probiotics that stated "contained wheat" on the back!   The doctor i really wanted to see.... Dr. Crowe at the UCSD celiac clinic. This wonderful place seemed to be the solution to all my gastrointestinal needs. The only problem i faced, my insurance.   The battle began with my

Nicki Raeleen

Nicki Raeleen

Herr Foods Announces Recall of Sour Cream & Onion Potato Chips Marked Gluten-Free, but Contain Gluten

Herr Foods Inc. has initiated a voluntary recall of certain bags of its 1.875 oz. Sour Cream & Onion Potato Chip due to a packaging error that incorrectly states that the product is gluten free. While the back panel of the package complies with U.S. Food & Drug Administration (FDA) label regulations by listing "Wheat" in the ingredient statement as well as "Contains Wheat" in its related allergen statement, the front panel of the package erroneously features the words "Gluten Free.

Scott Adams

Scott Adams

You're Prescribing Me WHAT!?!

My name is Nicole and i am 19 years old. I go to college and work, and have a loving family and boyfriend who have got my back. I have been diagnosed with celiac disease, through blood and scope, for more than 4 years now. I also got diagnosed with DH, eczema, and a large file of allergies.    To catch up on what has happened:   About 8 months ago i started to feel very ill with the normal GI symptoms, knowing i had celiac i relooked at my diet, only eating simplistic gluten free meals. When tha

Nicki Raeleen

Nicki Raeleen

100% Celiac-Free…and other marketing blunders.

We have all been warned about tricksy stunts included in fine print.  We all know someone who has been duped by a some technical legal speak.  But what about the in your face statements that are just plain misleading?  When it comes to gluten free statements, errors whether accidental or intentional can be harmful.  The sad thing is that as more companies want a piece of the gluten-free pie, not all companies take due diligence in understanding gluten-free.   Just yesterday I experienced this no

beachbum

beachbum



  • Celiac.com Sponsor (A15-m):


  • Blog Comments


    • I feel sorry for your daughter!  Every new symptom needs to be documented, either by you or your daughter. When you have celiac disease for as long as I have, you find all sorts of rashes and headaches and abdominal pains that you never had before.  We are not doctors, and neither are you, but it would help your daughter if you could read up on celiac disease as much as possible.  Unfortunately, it is a connective tissue disease, which as such can mimic other connective tissue diseases.  I would ask you if you have tried any milk other than dairy, like coconut milk or some of the other great milks they have now... just to see if she has an allergy to dairy.  This is only a possibility, but worth trying since you have to pay to see a specialist.  Scott Adams, our Editor has so much research on file regarding celiac disease and its favorite connective tissue disease. You will read up about dairy allergies, and also about thyroid disease, because these two seem to "pop" up time and time again with celiac disease.  There are so many things to cause headaches, such as needing glasses.  Of course then you say,  "But she only has headaches when she eats". Can you possibly keep a diary as to what she has eaten that day...in order to eliminate other foods she may be allergic to.  So many questions;- "Has she been sleeping on a different pillow, like a feather pillow, have you bought a new family pet, especially a cat with the dander from its fur. Is there a trigger point when the headaches strike.  I get headaches when I have been glutened, but I have had celiac disease for so long I can almost tell what has attacked me, or made me go on the hunt for the culprit.  If you have medical coverage it might be worth while getting a referral naturopath or a specialist. Many people who have celiac disease also find they are allergic to cows milk and even cheese.  You could go on line to the University of Chicago, Celiac Disease Centre and ask one of the research team there if they have some suggestions. Sadly, they have restricted joining their newsletter to the medical facility, and even checked my background prior to admitting me. If you know someone who is a nurse, you could possibly get them to help you, or last choice, go on the internet and ask the question.  They come up with lots of suggestions, but primarily they will mention dairy allergy right along with dust mites and the Spring allergy season we are in right now.


    • Blue Sky,

      I thought you enjoy the new research I found recently on how nutrient (deficiencies) can regulate our Tight Junctions (TJ) leading to Leaky Gut in time.

      Entitled "Regulation of the intestinal barrier by nutrients: The role of tight junctions"

      https://onlinelibrary.wiley.com/doi/10.1111/asj.13357

      I hope this is helpful but it is not medical advice.

      Posterboy,


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-m):




×
×
  • Create New...