Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Publications & Publicity

Share stories, news, and articles here. 


16,608 topics in this forum

  1. psawyer
    Ursa Major
    • 2 replies
    • 2k views
  2. ms-sillyak-screwed
    tiredofdoctors
    • 14 replies
    • 3.1k views
  3. ms-sillyak-screwed
    • 14 replies
    • 4k views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. ehrin
    ebrbetty
    • 5 replies
    • 1.7k views
  6. GC1
    flagbabyds
    • 8 replies
    • 2.9k views
  7. Lisa
    DingoGirl
    • 55 replies
    • 25.1k views
  8. oliviasmom
    VydorScope
    • 3 replies
    • 2.8k views
  9. floridanative
    • 2 replies
    • 2.3k views
  10. Lisa
    plantime
    • 27 replies
    • 9k views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. mrsnj91
    cornbread
    • 1 reply
    • 1.9k views
  13. floridanative
    Idahogirl
    • 8 replies
    • 2.7k views
  14. Moongirl
    ehrin
    • 4 replies
    • 1.9k views
  15. francelajoie
    Judyin Philly
    • 9 replies
    • 4.9k views
  16. happygirl
    flagbabyds
    • 1 reply
    • 1.6k views
  17. CMCM
    Judyin Philly
    • 5 replies
    • 2.1k views
  18. megsylvan2
    floridanative
    • 3 replies
    • 2.8k views
  19. corinne
    flagbabyds
    • 14 replies
    • 2.9k views
  20. floridanative
    • 2 replies
    • 1.7k views
  21. nothungry
    • 0 replies
    • 1.5k views
  22. mookie03
    • 0 replies
    • 1.3k views
  23. Claire
    Rusla
    • 2 replies
    • 1.5k views
  24. flagbabyds
    • 0 replies
    • 1.5k views
  25. lpellegr
    Judyin Philly
    • 2 replies
    • 2.2k views
  26. pumpkin
    jenvan
    • 3 replies
    • 2.8k views
  27. JenM
    ms-sillyak-screwed
    • 16 replies
    • 5k views
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,199
    • Most Online (within 30 mins)
      7,748

    Andrea Spencer
    Newest Member
    Andrea Spencer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.