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Recent Activity
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- HectorConvector replied to HectorConvector's topic in Related Issues & Disorders310Terrible Neurological Symptoms
An interesting note (though not something that I recommend) is that in the last couple of winters before this one, I drank tons of alcohol because I found it reveresed the pain substantially. It seemed it muted it, then I stopped worrying about it, and so on, so that it was reversing the sensitization cycle. I mean, strong alcohol. Not a few beers. Talking... -
- HectorConvector replied to HectorConvector's topic in Related Issues & Disorders310
Terrible Neurological Symptoms
Update about this condition. Into late 2025/early 2026 the symptom, which is a clear stocking/glove pattern (it is now frequent in my hands as well as feet and lower legs) has basically outgrown the medication (Duloxetine, now at max dose of 120mg/day). I notice that strong pain occurs when my mind de-focuses in particular, then if I focus awareness... -
- Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications10Reverse Osmosis (RO) Water
I did another Google Search and found this on the GE appliance website regarding their GE® RPWFE™ REFRIGERATOR WATER FILTER 3-PACK. Just go down the QA section and type the word gluten in the search. Here are the results: As mentioned in my last post, if you plan to use a filter it is a good idea to contact the manufacturer. -
- Known1 replied to Known1's topic in Gluten-Free Foods, Products, Shopping & Medications10
Reverse Osmosis (RO) Water
I am sorry to hear you went through that @YoshiLuckyJackpotWinner888. That could not have been an easy thing to figure out. I just used Uncle Google to perform this search: "Can water filters contain gluten?" Here is the AI overview that was returned: Yes, some water filters can theoretically contain or be processed with gluten. While rare, certain... -
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Posts
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By HectorConvector · Posted
An interesting note (though not something that I recommend) is that in the last couple of winters before this one, I drank tons of alcohol because I found it reveresed the pain substantially. It seemed it muted it, then I stopped worrying about it, and so on, so that it was reversing the sensitization cycle. I mean, strong alcohol. Not a few beers. Talking 25% ABV stuff and well beyond any limit anyone has ever seen. Yes, bad for other reasons. But it was interesting, that even after stopping the alcohol (which I could do overnight, for some reason I don't get dependent) the nerve pain would stay "low" for a while, but then gradually ramp up again to where it was before. Obviously, that's not a long term solution as my liver would probably shrivel up and I'd go broke. So the pain clinic hopefully finds a better way to desensitize the condition. -
By HectorConvector · Posted
Update about this condition. Into late 2025/early 2026 the symptom, which is a clear stocking/glove pattern (it is now frequent in my hands as well as feet and lower legs) has basically outgrown the medication (Duloxetine, now at max dose of 120mg/day). I notice that strong pain occurs when my mind de-focuses in particular, then if I focus awareness again, the pain becomes inhibited. Pain is much worse after meals as has always been the case, and particularly after exercising for some time - the effect is accumulative over weeks. Even when my energy is excellent with no fatigue. Infact, last year doing cycling, it was the increased pain alone that made me have to reduce what I did. I got very fit and energetic, but had awful stabbing foot pains on the surface of the big toe, or sometimes heel, or anywhere in the skin of the foot and sometimes lower leg. These are not muscle pains or internal to the foot or leg. They are happening on the surface. I've had a referral back to the neurology department at my local hospital but the waiting list is a year long. I went back to the doctor who has been updated on everything and has looked over previous and recent blood tests, skin biopsy, and other tests. All tests reveal there is no nerve damage. Infact my nerve density in the biopsy showed much better than average nerve health. There are no nutritional deficiencies and I regularly supplement my diet with Vitamin D, B1 and B2, and Magnesium Glycinate. None of these have helped at all. The pain syndrome just outgrows everthing. It has now become investigated as a chronic pain syndrome with severe central sensitization. It takes less and less provocation to produce the same symptoms, which is indicative of a fault in the descending inhibition of pain mechanism and nociplasticity in the amplification of pain signals. As such I'm being referred to a pain specialist and will see what they recommend. -
I did another Google Search and found this on the GE appliance website regarding their GE® RPWFE™ REFRIGERATOR WATER FILTER 3-PACK. Just go down the QA section and type the word gluten in the search. Here are the results: As mentioned in my last post, if you plan to use a filter it is a good idea to contact the manufacturer.
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I am sorry to hear you went through that @YoshiLuckyJackpotWinner888. That could not have been an easy thing to figure out. I just used Uncle Google to perform this search: "Can water filters contain gluten?" Here is the AI overview that was returned: Yes, some water filters can theoretically contain or be processed with gluten. While rare, certain refrigerator or pitcher filters may use wheat starch as a binder for the activated carbon. For individuals with high sensitivity or celiac disease, contacting the manufacturer to confirm if they use wheat or corn starch is recommended. Potential Risk: Some refrigerator and aftermarket filters may use wheat-based components to bind carbon, potentially causing issues for those with celiac disease or gluten sensitivities. Alternatives: Many water filters, such as those from AquaTru Water, are explicitly manufactured to be free of gluten, corn, and soy. General Safety: Most standard water filters are safe, and the risk of significant gluten contamination is low, but not zero for highly sensitive individuals. If you are highly sensitive, checking with the specific manufacturer of your filter is the safest course of action. --End Quote
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By YoshiLuckyJackpotWinner888 · Posted
Most people are already deficient in minerals. I can understand the concern. However, if you do happen to get enough through supplementation, drinking pure distilled water is not going to matter. I happen to get over 100% of rda vitamins and minerals. I push myself to get 4000 mg of potassium a day through food, drinks, and supplements combined. I don’t know anyone else that does. The rda is closer to 4700 mg a day. For anyone else that might be deficient, I suppose tap water might be a better option. I personally can’t stand the taste of most city tap water sources. I don’t mind mineral water and prefer it when possible. I recently found out we would need to drink 5 liters of San Pellagrino mineral water a day to get enough lithium to satisfy the suggested 1 mg a day. Unfortunately, this and other mineral waters can also have trace amounts of uranium that occur naturally in nature. Uranium is not a good thing to have in your water. I wouldn’t want that or naturally occurring lead in my water. There is no perfect solution for drinking water. Smart water distills and then adds back in some electrolytes. I could evaporate two gallons day of tap water or mineral water and the remaining sodium, potassium, calcium, magnesium, iron, etc… wouldn’t amount to what I already consume on a daily basis. I’m not worried about drinking distilled water.
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