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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- knitty kitty replied to Zuma888's topic in Related Issues & Disorders2Burning sensation when I wake up
Hi, @Zuma888, Hashimoto's commonly occurs with Celiac Disease. Those HLA genes code for other autoimmune diseases along with Celiac. Hashimoto's and Celiac overlap. People with Hashimoto's produce anti gluten antibodies, so a gluten free diet is definitely a must. It may be safe to assume you've got Celiac Disease as well. People with Hashimoto... -
- Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease16Struggling to get into a good pattern
Thanks so much. 🙏 I see they have them on Amazon. I'm all over it. I'll let you know how it goes.- 1
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- knitty kitty replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease16
Struggling to get into a good pattern
@Rejoicephd, So glad you checked your multivitamin! I like Life Extension brand. Their BioActive Complete B Complex has active forms of the B vitamins. Note that one serving is two capsules, so you can take one capsule at each of two meals, boosting opportunity for absorption. Life Extension also makes Benfotiamine (100 mg). Take one at... -
- Jessica H replied to Jessica H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12Help Interpreting My Lab Results? (updated)
Hi trents, just an update to my post, I had my follow up with my gastroenterologist. Scheduled my endoscopy for July 17th and got my biopsy results back July 28th. I have my official diagnosis now and I do in fact have Celiac disease. I'm slowly starting to switch my diet over to completely gluten free. My goal is to be completely gluten free after Christmas... -
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By knitty kitty · Posted
Hi, @Zuma888, Hashimoto's commonly occurs with Celiac Disease. Those HLA genes code for other autoimmune diseases along with Celiac. Hashimoto's and Celiac overlap. People with Hashimoto's produce anti gluten antibodies, so a gluten free diet is definitely a must. It may be safe to assume you've got Celiac Disease as well. People with Hashimoto's often have deficiencies in Vitamin C and Thiamine. Vitamin deficiencies are common in Celiac Disease. A deficiency in Thiamine can manifest as Gastrointestinal Beriberi with digestive upsets and changes in bowel habits. Your burning sensation and extreme fatigue for days after working out may be due to a lack of Thiamine and B vitamins. If you don't have sufficient Thiamine, lactic acid can build up in muscles causing that burning sensation. Anybody remember Jane Fonda's workouts? Her catch phrase was "Feel the burn" meaning work out so hard, lactic acid builds up causing the burning sensation. Thiamine and the B vitamins are needed to clear that lactic acid and repair muscle damage. Supplementing with a B Complex and Benfotiamine, a form of thiamine shown to promote intestinal healing, and magnesium would be beneficial to help you feel better. Blood tests for vitamin deficiencies are inaccurate. Take Thiamine and B vitamins, then look for health improvements. If not needed or absorbed, excess B vitamins are easily excreted in urine. -
By Rejoicephd · Posted
Thanks so much. 🙏 I see they have them on Amazon. I'm all over it. I'll let you know how it goes. -
By knitty kitty · Posted
@Rejoicephd, So glad you checked your multivitamin! I like Life Extension brand. Their BioActive Complete B Complex has active forms of the B vitamins. Note that one serving is two capsules, so you can take one capsule at each of two meals, boosting opportunity for absorption. Life Extension also makes Benfotiamine (100 mg). Take one at each of two meals in addition to the B Complex. Don't take thiamine and B vitamins close to bedtime, you may be too energized to sleep. I like Life Extension's Neuro Mag, a form of magnesium that can get into the brain easily, which helps immensely with improving headaches and muscle tension in the neck. I'm so glad you're enjoying the forum! -
Hi trents, just an update to my post, I had my follow up with my gastroenterologist. Scheduled my endoscopy for July 17th and got my biopsy results back July 28th. I have my official diagnosis now and I do in fact have Celiac disease. I'm slowly starting to switch my diet over to completely gluten free. My goal is to be completely gluten free after Christmas this year. I know I should be stopping completely now, but I am have a really hard time with change so my doctor told me I could do this gradually if it was easier for me. Now I know though and can make myself better with simple steps, no medication and have peace of mind knowing what I have is not the end of the world. Thanks again for your support. I've learned a lot over the last couple of months.
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By Rejoicephd · Posted
@knitty kitty thank you for this suggestion. Yes definitely. Actually, since you brought it up, I just looked to see what amount of B vitamins my multi-vitamin had in it. I just realized that not only am I taking the version of thiamine that you mentioned doesn't absorb well, but also that I inadvertently reduced the amount of thiamine that I'm taking daily over time. I'm just now looking at the bottles for the last three multi-vitamins that I was taking (including the current one I'm taking now). I started with thiamine mononitrate at 25mg but that turned out not to be a gluten-free multivitamin, so then I switched to a gluten-free multivitamin with 1.1mg thiamine mononitrate, and then when my GI doc advised me to switch to an independent iron pill, I got a new multi-vitamin gummy that lacked iron. Now I'm realizing that this gummy only has 0.14mg thiamine mononitrate. So not only are these not the right kind of thiamine but they are waaaay low. Probably going on a gummy is a bad idea anyway... I will look into a B complex and if you have any suggestions of a specific one that worked for you, I would gladly take the suggestion! Thanks so much. this is such an awesome forum!!!
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