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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Scott Adams replied to NoriTori's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10undiagnosed Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems
Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives...- auto-immune
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- trents replied to NoriTori's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10undiagnosed Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems
@NoriTori, you say, "No one said anything about eating gluten consistently until testing, the appointment was scheduled and an address was given. " We hear this all too often. Sloppy medical practice.- 1
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- Beverage replied to Mettedkny's topic in Gluten-Free Foods, Products, Shopping & Medications8crunchmaster Searching for the source - anyone have problems with Crunchmaster crackers?
Yes it's so frustrating. Gluten is everywhere! Any airborne gluten possibilities? Home remodel projects? Any pets eating gluten (they eat, lick themselves, you pet them....). Sickest glutening I got was from taking care of my neighbor's chickens, they would get all excited, kick up the shavings which had their food in it, the coop would get filled with airborne...- 1
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- NoriTori replied to NoriTori's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10undiagnosed Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems
@Scott Adams No one said anything about eating gluten consistently until testing, the appointment was scheduled and an address was given. I don't even have access to the results as it stands. I was just told "everything looks fine, but slight irritation." I don't know if they took a biopsy because I have no access to the results. I don't know how many samples...- 1
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By Scott Adams · Posted
Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider. -
@NoriTori, you say, "No one said anything about eating gluten consistently until testing, the appointment was scheduled and an address was given. " We hear this all too often. Sloppy medical practice.
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Yes it's so frustrating. Gluten is everywhere! Any airborne gluten possibilities? Home remodel projects? Any pets eating gluten (they eat, lick themselves, you pet them....). Sickest glutening I got was from taking care of my neighbor's chickens, they would get all excited, kick up the shavings which had their food in it, the coop would get filled with airborne dust, I breathed it in).
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@Scott Adams No one said anything about eating gluten consistently until testing, the appointment was scheduled and an address was given. I don't even have access to the results as it stands. I was just told "everything looks fine, but slight irritation." I don't know if they took a biopsy because I have no access to the results. I don't know how many samples they took (I recently learned they're supposed to take more than one), I don't know what things looked like internally, it was just word of mouth and I didn't know any better to pry and get copies of everything. And I know! I also have chronic Anemia, never truly resolved UNTIL I went gluten free, and low vitamin D (fairly normal in black community), and low creatine (also resolved with gluten free diet). I plan to request a new dermatologist! As well as a referral to Gastro. Food/symptom diary is a great idea though. I have no way of cooking as it stands, so even just the basics wouldn't work for me.
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@NoriTori, "gluten intolerance" is a general term that can refer to either celiac disease or NCGS. NCGS is often referred to as "gluten sensitivity" for short. Though, admittedly, there is still a great deal of inconsistency in the use of terms by the general public.
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