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Coping with Celiac Disease
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Recent Activity
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- Russ H replied to AllyJR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms18Confused about my results
There is a predictive model for children on this link. Depends on sex, HLA genes and number of affected close relatives. The model only goes up to age 12 so it would be interesting to know what the lifetime risk is. https://hputter.shinyapps.io/preventcd/- 1
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- thejayland10 replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease13TTG IgA and IGA elevated mildy
That is a very good point I do not know if they truly ever went down. With my nutrient levels all being good, CBC, metabolic panel I assumed everything was fine over the years. Now Im worried this is refractory celiac or something else -
- RMJ replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease13TTG IgA and IGA elevated mildy
I don’t know how common it is, but it happens. Total IgA going up is not necessarily celiac related. The body can make IgA antibodies against all sort of things. But if I understand correctly that until recently you haven’t had a celiac blood test since diagnosis, how do you know that your recent blood tests are a mild rise, vs never going down to ... -
- thejayland10 replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease13
TTG IgA and IGA elevated mildy
interesting I did not know that was that common or could take that long. When I was diagnosed 15 yrs ago I was told just follow gluten-free diet and follow up with primary care doctor (who never checked celiac panel again). I felt way better and all the major symptoms went away. It wasn't until recently at 25 (14 yrs after diagnosis) that I thought to follow... -
- RMJ replied to thejayland10's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease13
TTG IgA and IGA elevated mildy
Do you have any other results from either of the two labs where you’ve been tested recently? If so, are the newest results from that lab elevated over previous results? It took me 5 years to get all of my antibodies into the normal range. Then 3 years later one went up into the positive range. I realized that I had started baking with a different b...
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There is a predictive model for children on this link. Depends on sex, HLA genes and number of affected close relatives. The model only goes up to age 12 so it would be interesting to know what the lifetime risk is. https://hputter.shinyapps.io/preventcd/
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By thejayland10 · Posted
That is a very good point I do not know if they truly ever went down. With my nutrient levels all being good, CBC, metabolic panel I assumed everything was fine over the years. Now Im worried this is refractory celiac or something else -
I don’t know how common it is, but it happens. Total IgA going up is not necessarily celiac related. The body can make IgA antibodies against all sort of things. But if I understand correctly that until recently you haven’t had a celiac blood test since diagnosis, how do you know that your recent blood tests are a mild rise, vs never going down to the normal range? That also can happen, although not too common. Some people with celiac disease do react even to purity protocol certified gluten free oats. Removing oats from your diet for a few months and retesting is probably a good idea.
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By thejayland10 · Posted
interesting I did not know that was that common or could take that long. When I was diagnosed 15 yrs ago I was told just follow gluten-free diet and follow up with primary care doctor (who never checked celiac panel again). I felt way better and all the major symptoms went away. It wasn't until recently at 25 (14 yrs after diagnosis) that I thought to follow up with a gastro doctor who then did a celiac panel and noted those minor elevations 3 months ago then I got them checked again by another doctor the other week and were showing roughly the same thing. I am very strict with what I eat and dieitican was maybe thinking it could be oat flour. I do eat a fair amount of processed food but I will not touch anything unless it is certified gluten free. Do you see this pretty commonly with others? Having mild rises in TTG IGA and IGA who have been on gluten-free diet for years? -
Do you have any other results from either of the two labs where you’ve been tested recently? If so, are the newest results from that lab elevated over previous results? It took me 5 years to get all of my antibodies into the normal range. Then 3 years later one went up into the positive range. I realized that I had started baking with a different brand of gluten free flour. When I stopped using that flour the level went back to normal. Has something changed in your diet, environment, activities, medications or other areas where you could possibly be exposed to gluten?
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