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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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- knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis6Help I’m cross contaminating myself,
I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet. Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down. Sort of like feeding a sick baby easy to digest food instead of spicy pizza. It's important to get the inflammation... -
- klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis6Help I’m cross contaminating myself,
So I should not eat my gluten free bread? I will try the vitamins. Thank you all so very much for your ideas and understanding. I'm feeling better today and have gathered back my composure!- 1
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- knitty kitty replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Taking Probiotics but Still Getting Sick After Gluten – Advice?
Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night. You might want to try that and see if that makes any difference. Several slices of toast for breakfast sounds okay. Just try to work up to the Ten grams of gluten. Cookies might only have a half of a gram of gluten. The weight of the whole cookie is...- advice
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- Clear2me replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications2Gluten free nuts
Thank you, a little expensive but glad to have this source. -
- Xravith replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12Taking Probiotics but Still Getting Sick After Gluten – Advice?
@knitty kitty Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount...- advice
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By knitty kitty · Posted
I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet. Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down. Sort of like feeding a sick baby easy to digest food instead of spicy pizza. It's important to get the inflammation down because chronic inflammation leads to other health problems. Histamine is released as part of the autoimmune response to gluten. High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies. Some foods are high in histamine. Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure. Vitamin D helps regulate the immune system and calm it down. Vitamin D is frequently low in Celiacs. The B Complex vitamins and Vitamin C are needed to clear histamine. Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing. Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are. They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function. Talk to your doctor or nutritionist about supplementing while healing. Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health). Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize. Meats and liver are good sources of B vitamins. Dr. Sarah Ballantyne wrote the book, the Paleo Approach. She's a Celiac herself. Her book explains a lot. I'm so glad you're feeling better and finding your balance! -
By klmgarland · Posted
So I should not eat my gluten free bread? I will try the vitamins. Thank you all so very much for your ideas and understanding. I'm feeling better today and have gathered back my composure! -
By knitty kitty · Posted
Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night. You might want to try that and see if that makes any difference. Several slices of toast for breakfast sounds okay. Just try to work up to the Ten grams of gluten. Cookies might only have a half of a gram of gluten. The weight of the whole cookie is not the same as the amount of gluten in it. So do try to eat bread things with big bubbles, like cinnamon rolls. Yeah, I'm familiar with the "death warmed over" feeling. I hope you get the genetic test results quickly. I despise how we have to make ourselves sick to get a diagnosis. Hang in there, sweetie, the tribe is supporting you. -
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@knitty kitty Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better. I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast?
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