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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,271 topics in this forum

  1. Medcoder03
    IrishHeart
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  2. Peppa-minto
    eatmeat4good
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  3. Medcoder03
    Kamma
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  5. Oneiros
    MitziG
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  6. dkitterman
    psawyer
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  7. Howlin-Radio
    tom
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  8. abby03
    GFinDC
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  9. toriabd
    nora-n
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    nora-n
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  12. mike oord
    Minstinguette
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  13. DogWalkerNYC
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  14. WitsEnd
    tom
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  15. ameslaw84
    Bubba's Mom
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  16. justlisa
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  17. Wish4Bread
    GFinDC
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  18. MrsMcC
    nora-n
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  19. Clarabelle
    MitziG
    • 2 replies
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  20. RNEN80
    Lumi
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  21. lclw
    Mom-of-Two
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  22. ShannonA
    eatmeat4good
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  23. ker0pi
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  24. JohnTummyAche
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  25. ShortyAnne
    beachbirdie
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  26. heathenly
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    Skylark
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  • Posts

    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
    • Colleen H
      Hi everyone  This has been a crazy year so far... How many people actually get entire sensory overload from gluten or something similar ?  My jaw is going nuts ..and that nerve is affecting my upper back and so on ...  Bones even hurt.  Brain fog. Etc  I had eggs seemed fine.   Then my aid cooked a chicken stir fry in the microwave because my food order shorted a couple key items .   I was so hungry but I noticed light breading and some ingredients with SOY !!! Why are we suffering with soy ? This triggered a sensitivity to bananas and gluten-free yogurt it seems like it's a cycle that it goes on.  The tiniest amount of something gets me I'm guessing the tiny bit of breading that I took one tiny nibble of ...yikes ..im cringing from it .. Feels like my stomach is going to explode yet still very hungry 😔  How long does this last?! Thank you so much 
    • Scott Adams
      This is an older article, but may be helpful.  
    • gfmom06
      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
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