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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,301 topics in this forum

  1. Flasaltwater
    pricklypear1971

    How Many Have Gi Symptoms With Dh

    By Flasaltwater, Last action:
    • 9 replies
    • 1.5k views
    • pricklypear1971
    • pricklypear1971
  2. nihao
    kareng

    I Think I Have Celiac Disease

    By nihao, Last action:
    • 10 replies
    • 2.1k views
    • kareng
    • kareng
  3. mcat1234
    Skylark

    My Enterolab Results - Dq 2 And Dq6

    By mcat1234, Last action:
    • 4 replies
    • 1.7k views
    • Skylark
    • Skylark
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  4. Dreamer80
    sreese68

    Blood Test Negative

    By Dreamer80, Last action:
    • 5 replies
    • 1.9k views
    • sreese68
    • sreese68
  5. Jill2011
    Skylark

    Could Elevated Sgpt And Normal Sgot Mean Celiac?

    By Jill2011, Last action:
    • 7 replies
    • 19k views
    • Skylark
    • Skylark
  6. Guest
    eatmeat4good

    Could It Be Celiac?

    By Guest, Last action:
    • 1 reply
    • 1.1k views
    • eatmeat4good
    • eatmeat4good
  7. reardenstone
    beebs

    Go Back To Eating Gluten For 5 Days Before Getting Tested? (Newb)

    By reardenstone, Last action:
    • 7 replies
    • 2.4k views
    • beebs
    • beebs
  8. Weasel007
    pain*in*my*gut

    Blood Results: What Does This All Mean?

    By Weasel007, Last action:
    • 1 reply
    • 16.7k views
    • pain*in*my*gut
    • pain*in*my*gut
  9. Coleslawcat
    ravenwoodglass

    Celiac In 9 Month Old?

    By Coleslawcat, Last action:
    • 1 reply
    • 1.3k views
    • ravenwoodglass
    • ravenwoodglass
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  11. Flasaltwater
    Gluten Free Traveller

    Almost 4 Weeks gluten-free And Major Brain Fog

    By Flasaltwater, Last action:
    • 3 replies
    • 1k views
    • Gluten Free Traveller
    • Gluten Free Traveller
  12. ShawnieB
    Gluten Free Traveller

    Is It Ok To Have Gluten Every Once In A While?

    By ShawnieB, Last action:
    • 3 replies
    • 6.9k views
    • Gluten Free Traveller
    • Gluten Free Traveller
  13. jenny2
    jebby

    Celiac Or Crohns?

    By jenny2, Last action:
    • 2 replies
    • 1.5k views
    • jebby
    • jebby
  14. Regameleca
    pain*in*my*gut

    Gluten Reaction-How Long Can It Last?

    By Regameleca, Last action:
    • 3 replies
    • 1.1k views
    • pain*in*my*gut
    • pain*in*my*gut
  15. slpinsd
    ravenwoodglass

    B12 Malabsorption?

    By slpinsd, Last action:
    • 7 replies
    • 3.1k views
    • ravenwoodglass
    • ravenwoodglass
  16. Goobieville
    Skylark

    High Gluten Foods For Babies....

    By Goobieville, Last action:
    • 2 replies
    • 1.2k views
    • Skylark
    • Skylark
  17. CR5442

    Gluten Sensitive With Other Allergies Appearing?

    By CR5442, Last action:
    • 0 replies
    • 682 views
    • CR5442
    • CR5442
  18. smvillers
    ravenwoodglass

    Miserable Waiting For Test

    By smvillers, Last action:
    • 3 replies
    • 973 views
    • ravenwoodglass
    • ravenwoodglass
  19. Nancy19
    frieze

    Finally...testing?

    By Nancy19, Last action:
    • 1 reply
    • 1k views
    • frieze
    • frieze
  20. alexsami
    Skylark

    Please Help With Blood Results

    By alexsami, Last action:
    • 7 replies
    • 1.2k views
    • Skylark
    • Skylark
  21. peeptoad
    shadowicewolf

    Genetic Testing For Celiac

    By peeptoad, Last action:
    • 4 replies
    • 1.5k views
    • shadowicewolf
    • shadowicewolf
  22. beebs
    ravenwoodglass

    How Long For A Gluten Reaction

    By beebs, Last action:
    • 10 replies
    • 2.6k views
    • ravenwoodglass
    • ravenwoodglass
  23. Dreamer80
    shadowicewolf

    Tested Today

    By Dreamer80, Last action:
    • 5 replies
    • 1.2k views
    • shadowicewolf
    • shadowicewolf
  24. jjchenoa

    Gluten In Air

    By jjchenoa, Last action:
    • 3 replies
    • 1.8k views
    • jjchenoa
    • jjchenoa
  25. tmk
    Laura Marie

    How Long For Blood Results?

    By tmk, Last action:
    • 7 replies
    • 36.5k views
    • Laura Marie
    • Laura Marie
  26. Samwise16

    Waiting On Test Results

    By Samwise16, Last action:
    • 2 replies
    • 1.4k views
    • Samwise16
    • Samwise16

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  • Recent Activity

    1. trents
      - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it. But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder...
    2. ainsleydale1700
      - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

      Thanks for the insight! It has been a whirlwind...very overwhelming and frustrating at times. But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion
    3. heart390
      - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      THANKS again!!!
    4. trents
      - trents replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    5. heart390
      - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago. The gluten will be my 4th autoimmune disease. Thanks so much for all your input!!!
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  • Posts

    • trents
      Confused about HLA-DQ Celiac gene test result

      By trents · Posted

      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
    • heart390
      Why now?

      By heart390 · Posted

      THANKS again!!!
    • trents
      Why now?

      By trents · Posted

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    • heart390
      Why now?

      By heart390 · Posted

      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago.  The gluten will be my 4th autoimmune disease.  Thanks so much for all your input!!!
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