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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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  • Recent Activity

    1. - cristiana replied to lehum's topic in Super Sensitive People
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      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    2. - trents replied to lehum's topic in Super Sensitive People
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      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    3. - Heavenly Flower replied to lehum's topic in Super Sensitive People
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      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

    4. - Known1 replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
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      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    5. - Haugeabs replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      23

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • cristiana
      Hello @Heavenly Flower Welcome to the forum!  It will take time to master the diet and find what foods you can eat but I'd suggest what might make it easier is to keep a food diary.   You can write down what you ate, and then any symptoms that arise in a day.  Patterns do start to emerge. Also, it is worth bearing in mind that sometimes intolerances are temporary. I was temporarily dairy intolerant following diagnosis, and my gastroenterologist advised I should come off dairy for 3 weeks to see if it helped with painful lower abdominal bloating, and it did.  As I have healed I have been able to consume it again. If you get symptoms consuming 'pure oats' (gluten free oats, i.e. oats grown apart from and processed separately to gluten containing crops, andthe only oats we as coeliacs should be eating), the advice here in the UK is to stop eating them, then try them again in about six months.   Not to discourage you but it too me some years to be able to eat them without getting a sore stomach, but now so long as I don't overdo things, I can eat them every day.
    • trents
      Welcome to celiac.com, @Heavenly Flower!  You're off to a good start but you can certainly branch out some. White rice is fairly devoid of nutrition. Baked potatoes with the skin (washed) would be a better choice for the starch unless, that is, you don't do well with members of the nightshade family. Yams or sweet potatoes would be even better because of the beta carotene. Do you have issues with eggs and dairy? How about fresh fish? What about fresh fruit? There are also non gluten alternative grains like quinoa, buckwheat (not related to wheat) groats and sorghum that are sold by companies like Bob's Red Mill that can be used for hot breakfast cereals. Gluten free oats is also an option, though some celiacs can't do oats because the protein in them (avenin) is similar enough to gluten to cause a reaction. Gluten is found only in wheat, barley and rye.
    • Heavenly Flower
      I was just diagnosed with celiac disease after Thanksgiving. I can't imagine what all you had to do to get all the information you have, it just seems so overwhelming. I am still trying to figure it all out and don't know if the information I'm getting is correct. I have been eating only white rice and chicken breast, pork, or steak and fresh vegetables.  Gluten free pretzels and rice cakes to snack on. But that's about it cause I don't know what I can eat it's to overwhelming.  I don't even know what symptom to look for for possible cross contamination cause I also have microscopic Colitis which has the same symptoms as celiac disease. I'm hoping at least being on this forum I can get information that will help me figure it all out. Sorry I am not able to help you and hope you get the relief you are looking for. 
    • Known1
      I just read this article here on Celiac.com.  For anyone interested in or following this thread, they may also want to read this article for additional insight:  
    • Haugeabs
      For my Vit D3 deficiency it was recommended to take with Vit K2 (MK7) with the Vit D. The Vit K2 helps absorption of Vit D3. Fat also helps with absorption. I take Micro Ingredients Vit D3 5000 IU with Vit K2 100 micrograms (as menaquinone:MK-7). Comes in soft gels with coconut oil.  Gluten free but not certified gluten free. Soy free, GMO free.   
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