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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Scott Adams replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Frustrated
It sounds like you’ve been doing everything right—strictly avoiding gluten, managing food allergies, and advocating for yourself—yet you’re still dealing with severe pain, exhaustion, and other debilitating symptoms. The fact that your colonoscopy came back clear after 31 years gluten-free is a testament to your diligence, but it doesn’t erase the very real... -
- Beverage replied to Betsy Crum's topic in Related Issues & Disorders8Chest pain from celiac
Could you be having acid reflux? I used to get it soooo bad before I was diagnosed, now very rarely. I didnt have stomach upset, aka silent reflux, but pain in chest (thought I was having a heart attack) and food would get stuck from the esophagus irritation. The things here really helped, especially raising head of bed, sip of apple cider vinegar before...- 1
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- Wheatwacked replied to Mrs. Cedrone's topic in Related Issues & Disorders4Canker sores
Studies have shown that individuals with canker sores tend to have lower levels of vitamin D in their blood compared to those without the condition. This suggests that vitamin D deficiency could be a risk factor for developing canker sores. Vitamin D deficiency is very common in Celiac Disease.- 1
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- Wheatwacked replied to Mrs Wolfe's topic in Related Issues & Disorders9
Cartilage and rib pain.
So Sunday night after writing that post about Losartan was causing weakness in my hips I decided to stop taking it, even if against medical advice. When I was 12 years old I read a book called The First Hundred Years of Surgery. It gave me insight to the politics, financials and egos of the world. My take-away at the time was: one day I'm going to have... -
- Stephanie Wakeman replied to Stephanie Wakeman's topic in Coping with Celiac Disease20Is it common to develop a wheat allergy in addition to Celiac Disease?
Wow, thank you for share Elisal! We do need to stay focused on the fact we are so much healthier without wheat and gluten as hard as it is! I've learned to love rice and almond flour based sweets and enjoy the corn and plantain chips as my go to salty snacks!- 1
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Posts
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Could you be having acid reflux? I used to get it soooo bad before I was diagnosed, now very rarely. I didnt have stomach upset, aka silent reflux, but pain in chest (thought I was having a heart attack) and food would get stuck from the esophagus irritation. The things here really helped, especially raising head of bed, sip of apple cider vinegar before meals with protein, heel thumping, and until it healed, taking DGL after meals to coat...do NOT take antacids https://drjockers.com/acid-reflux/ DGL https://www.amazon.com/Integrative-Therapeutics-Rhizinate-Deglycyrrhizinated-Licorice/dp/B001WUC406/
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By Wheatwacked · Posted
Studies have shown that individuals with canker sores tend to have lower levels of vitamin D in their blood compared to those without the condition. This suggests that vitamin D deficiency could be a risk factor for developing canker sores. Vitamin D deficiency is very common in Celiac Disease. -
By Wheatwacked · Posted
So Sunday night after writing that post about Losartan was causing weakness in my hips I decided to stop taking it, even if against medical advice. When I was 12 years old I read a book called The First Hundred Years of Surgery. It gave me insight to the politics, financials and egos of the world. My take-away at the time was: one day I'm going to have to find my own cure. Sunday 6 am was 134/60 after Losartan dose Sat nignt. Monday 8 am BP was 118/56 no Losartan sunday night. Tuesday (today) 6 am BP was 126/64. Getting up from the floor is improved. Brain fog improved, vision less foggy, cold feet not as cold, and not feeling like I need to go back to sleep almost as soon as I wake up. Doctors are required to follow protocols, not listen to patients. I say I hurt and they say "that's not common, the medicine protects you, is good for you, keep taking it" Not unlike Celiac Disease. You eat gluten, get sick and your blood and biopsy says you do not have Celiac Disease, you are not sick. Keep eating wheat because it is good for you. Despite what the doctors say, it appears ACE inhibiters and ARB BP meds are NOT good for me. One had me considering a walker would be good (it had me bent over). Standing straight once I stopped. One had me thinking a walker was in my future (lost quadracept stability in knees, Lisinoprol caused an inquinal hernia, something caused a blind spot in my right eye and cataracts in both. Amlodipine dehydrated me so I could not wear contacts, Losartan I was thinking a walker or wheelchair is immenent, hips and lower back getter weaker. My only vision issue at 70 was increasing nearsighted and farsighted; until we attempted to control my BP. I am not advocating ignoring medical advice, but sometimes I know what is better for me than what the protocols say. After all, I live in this body. Doctors only see me for 20 minutes every 3 months. My current list: Medications: Prednisolone 2.5 mg 6 am Clonidine 0.1 mg 6 am, 2pm, 10 pm Rosuvastatin 20 mg evening meal Glimiperide 2 mg morning meal, evening meal Nicotinic Acid (Niacin) 6 am, 2 pm, 10 pm Liquid Iodine 600 mcg once a day in a drink. Vitamins: Several times a week. B1 250 mg, B2 100 mg, B3 500 mg, B5 500 mg, B6 100 mg, B12 1 mg, DHEA 100 mg, vitamin D 250 mcg, vitamin C 500 mg, CoQ10 200 mg, Selenium 200 mcg Taurine 500 mg, -
By Stephanie Wakeman · Posted
Wow, thank you for share Elisal! We do need to stay focused on the fact we are so much healthier without wheat and gluten as hard as it is! I've learned to love rice and almond flour based sweets and enjoy the corn and plantain chips as my go to salty snacks! -
By Pablohoyasaxa · Posted
I feel your pain. Grain and gluten intolerant. Hang in there. This forum is very helpful
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