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Recent Activity
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- Rogol72 replied to suek54's topic in Dermatitis Herpetiformis9Awaiting dermatitis herpetiformis confirmation following biopsy
Hey @suek54, I also have Dermatitis Herpetiformis. I used to be on Dapsone but have managed to wean myself off it after many attempts. It's quiet a toxic drug, as it affects the bone marrow and red blood cells. It also artificially reduces Hemoglobin A1C. Mine was at 21 at one stage, I think normal is around 37. With dermatitis herpetiformis, you need... -
- suek54 replied to suek54's topic in Dermatitis Herpetiformis9Awaiting dermatitis herpetiformis confirmation following biopsy
Hi all Biopsy confirmed dermatitis herpetiformis. Strict gluten free diet going OK, I cook nearly everything from scratch anyway and am finding gluten free adaptations for most recipes. I seem to be tolerating 50mg Dapsone well, regular blood tests OK so far. Next derma appt in 8 weeks. I have some continuing itching and rash outbreaks, though... -
- trents replied to dani nero's topic in Dermatitis Herpetiformis191DH Photo Bank
@KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis? -
- KeriRae replied to dani nero's topic in Dermatitis Herpetiformis191DH Photo Bank
I've had this same rash on my back on and off for the last year or two. I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash. -
- Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com7Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm
It should be noted that Gluten Free Watchdog has voiced concerns about the methodology used by MomsAcrossAmerica's lab for their gluten testing. I don't have access behind their paywall, but here are 2 relevant public posts from them on this topic. (tldr: GFWD seems to believe that MAM's lab could have gotten false positives and they explain why they believe...
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Posts
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Hey @suek54, I also have Dermatitis Herpetiformis. I used to be on Dapsone but have managed to wean myself off it after many attempts. It's quiet a toxic drug, as it affects the bone marrow and red blood cells. It also artificially reduces Hemoglobin A1C. Mine was at 21 at one stage, I think normal is around 37. With dermatitis herpetiformis, you need to be really strict. It wasn't until I focused on getting the trace minerals the body needs that I managed to get off it. I believe getting the thyroid numbers in the optimal range also helped with Iodine and Selenium. Iodine doesn't bother me for some reason, but flares others as knitty kitty said. I take Viridian Trace Mineral complex and it's made a huge difference, among other vitamins and minerals. Now I can tolerate gluten free oats which I could never eat before. Though I only have them very occasionally in the form of gluten free soda bread . One thing I miss is my Mums Irish soda bread. Hope this helps.
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Hi all Biopsy confirmed dermatitis herpetiformis. Strict gluten free diet going OK, I cook nearly everything from scratch anyway and am finding gluten free adaptations for most recipes. I seem to be tolerating 50mg Dapsone well, regular blood tests OK so far. Next derma appt in 8 weeks. I have some continuing itching and rash outbreaks, though nowhere near as severe as they were, so I am hoping for an increased dose, as the effect only seems to last 6-7 hours. I think I may be burning through it more quickly than some due to other medication. Also I cannot mount a response to inflammation due to Addison's Disease. I hope others are finding their way though the minefield that is dermatitis herpetiformis. Hang on in there! Sue (in UK)
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@KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
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I've had this same rash on my back on and off for the last year or two. I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash.
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