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Recent Activity
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- captaincrab55 replied to Colleen H's topic in Coping with Celiac Disease1Heat intolerant... Yikes
Hi Colleen H, I suffered with the pins and needles/burning feeling in my legs and feet for at least 6 years until my Nephrologist figured out that I had to go on a low salt diet. He said my kidneys weren't strong enough to remove the salt. The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option. On the bright... -
- trents commented on Scott Adams's article in Autumn 2025 Issue24Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
The title of this article is misleading. To me, triggering celiac disease refers to something that causes the onset of celiac disease whereas the text of the article explains that what is being meant by the title is actually the triggering of celiac-like reactions or symptoms.- additives
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- Colleen H replied to Colleen H's topic in Coping with Celiac Disease5Gluten related ??
Yes this is very frustrating for me ... not sure what to think. Feels like I'm having reactions to a lot of things Now applesauce?? I don't understand 😞 -
- Colleen H commented on Scott Adams's article in Autumn 2025 Issue24
Gluten-Free Food Ingredients That Can Trigger Celiac Disease and IBS-like Symptoms
What about unsweetened applesauce?- additives
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- Scott Adams commented on Scott Adams's article in Latest Research3Understanding the Role of Transglutaminase 2 in Celiac Disease
@Jmartes71 It would probably be best to start a new topic in our forum under the "Coping" section, rather than to post this as an unrelated comment to this article.- autoimmune disorders
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By captaincrab55 · Posted
Hi Colleen H, I suffered with the pins and needles/burning feeling in my legs and feet for at least 6 years until my Nephrologist figured out that I had to go on a low salt diet. He said my kidneys weren't strong enough to remove the salt. The simple fix was a diuretic, but that med leaves the uric acid behind, so that wasn't an option. On the bright side the low salt diet lowered my BP over 20 points and and the pins and needles/burning feeling went away. Good Luck and hope this helps. -
Yes this is very frustrating for me ... not sure what to think. Feels like I'm having reactions to a lot of things Now applesauce?? I don't understand 😞
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I did ... But aren't we going to be vitamin deficienct if we are not eating due to being sick ?? If the food we eat is gluten free and we have other sensitivities , how do we get out of the cycle?? Thank you
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Anyone else get pins and needles. ??? Burning feeling ? Heat makes it so much worse 😔 Winter is here. I had to lower my thermostat because I couldn't take that hot air feeling 😔 Hopefully it goes away soon
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I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease".
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