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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- knitty kitty replied to Larzipan's topic in Related Issues & Disorders39Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?
Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment. The cow's body builds that Casein protein. It doesn't come from wheat. Casein can trigger the same reaction as being exposed to gluten in some people. This is not a dairy allergy (IGE mediated response). It is not lactose intolerance... -
- trents replied to Larzipan's topic in Related Issues & Disorders39Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?
Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the... -
- Scott Adams replied to Larzipan's topic in Related Issues & Disorders39Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?
Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats. -
- knitty kitty replied to Jmartes71's topic in Related Issues & Disorders10
My only proof
Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go! I'm certain you'll feel much better. Yes, supplementation is a good idea even if you're healing and gluten free. The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities... -
- NanceK replied to Jmartes71's topic in Related Issues & Disorders10My only proof
Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get cal...- 1
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By knitty kitty · Posted
Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment. The cow's body builds that Casein protein. It doesn't come from wheat. Casein can trigger the same reaction as being exposed to gluten in some people. This is not a dairy allergy (IGE mediated response). It is not lactose intolerance. -
Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
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By Scott Adams · Posted
Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats. -
By knitty kitty · Posted
Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go! I'm certain you'll feel much better. Yes, supplementation is a good idea even if you're healing and gluten free. The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices. I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well. I react to casein, the protein in dairy, as well as the iodine in dairy. My Dermatitis Herpetiformis is aggravated by iodine. Blood tests for B vitamin levels are notoriously inaccurate. You can have deficiency symptoms before blood levels change to show a deficiency. I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral. Because the B vitamins are water soluble, they are easily excreted in urine if not needed. It's better to have it and not need it than need it and not have it. Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing. Manufacturers add cheap vitamins that our bodies don't absorb or utilize well. Even normal people can suffer from vitamin deficiencies. The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy. The calories are stored as fat in an effort to ration out diminishing thiamine stores. It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well. Not sleeping well and fatigue are symptoms of Thiamine deficiency. I'm certain Benfotiamine with a B Complex will help you immensely. Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep. Better to take them earlier in your day. Do keep me posted on your progress! -
Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
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