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Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


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    • maryannlove
      Though trying to diligently eat gluten free, recent bloodwork was bad so searching for culprits.  Eat lot of (preferably mixed) nuts.  Most allergen labels say may be processed on equpment that also processes wheat, etc.  Finally found ONE kind (unsalted mixed) at BJ's.  Wessley (their store brand) that did not contain that warning.  Says in large letters "A GLUTEN FREE FOOD."  Well, all nuts are a gluten free FOOD!  Have been eating and now wonder if this is intentionally decieving.  So stopped eating until find culprit.  Nuts are so good for protein and fiber (especially if trying to not eat meat).  'Tis so frustrating.  Thanks to above, I'll look into Tierra Farms.   
    • somethinglikeolivia
      Fascinating! This was very helpful, thanks for sharing
    • maryannlove
      Despite being very diligent about eating gluten free, my recent bloodwork was bad.  So been on a mission to find the culprit(s).  During Covid my daughter found "certified gluten free" Yasso mint chocolate chip yogurt bars at Costco.  I was elated and have been eating them since.  When delving into possible culprits I discovered that the boxes with 12 bars at both Costco and BJ's no longer say "certified gluten free."  But the boxes with 4 bars at groceries and Target still say "certified gluten free."  Contacted the manufacturer and was told to go by what the box says.  So guess different machinery is used.  Was also told they were in the process of changing boxes.  Will be interesting to see what that brings.  
    • maryannlove
      Before I could call them (after all my research), Costco Pharmacy called and told me they found a generic gluten-free levothyroxine.  Was told name is Amneal brand.  Said they called and company  confirmed is gluten free.  Only one I had found was Lannett so did more research and found:  “BRIDGEWATER, N.J., Nov. 12, 2018.  Amneal Pharmaceuticals, Inc. (NYSE: AMRX) today announced that it has completed a transition agreement with Lannett Company. Under the terms of the agreement, Amneal will take over the distribution and marketing of Levothyroxine sodium tablets from Lannett beginning December 1, 2018 through March 23, 2019, ahead of when the Company's previously announced 10-year Levothyroxine distribution agreement with Jerome Stevens begins on March 23, 2019.” So looks like we’re good until at least 6/23/29.  Active ingredients are colloidal silicon dioxide, lactose, magnesium stearate, CORN STARTCH, acacia, sodium startch glycolate. Bottom line:  We can tell our pharmacists we need gluten-free, generic Amneal brand Levothyroxine.   AMEN.  
    • Scott Adams
      Given your severe symptoms it sounds like you would be much better off going 100% gluten-free!
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