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Coping with Celiac Disease

Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.


16,243 topics in this forum

  1. Renaye
    Gemini
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  2. moosemalibu
    w8in4dave
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  5. GF Lover
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  8. Cath R
    notme
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  12. kvanrens1
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    nvsmom
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  14. answerseeker
    nvsmom
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  15. Pegleg84
    Celtic Queen
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  17. Trapp
    cyclinglady
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    w8in4dave
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    1desperateladysaved
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  20. Salax
    LisaRae28

    Ada

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  21. mommy2krj
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  22. CR5442
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  23. gilligan
    cyclinglady
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  24. birdie22
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  25. answerseeker
    ravenwoodglass
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  26. HumanDecency
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    cyclinglady
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  • Recent Activity

    1. - anya22 replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Test interpretations

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      Test interpretations

    3. - anya22 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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  • Posts

    • trents
      Welcome to the celaic.com community, @anya22! It is possible that the positive tTG-IGA result is being caused by something besides celiac disease but it is not likely, especially in view of your symptoms. By the way, you are confusing the terms "negative" and "positive" as they are used in medical testing. "Negative" means the test resulted in no evidence of disease. "Positive" means the test result found evidence of disease. So, your tTG-IGA result was positive and the endomysial  (aka, EMA) was negative. And, by the way, it is not unusual for to get mixed results like that. You can have celiac disease and still find that not all the various tests will show positive results. But let me ask you, have you or had you been experimenting with a reduced gluten diet prior to the testing?
    • anya22
      Hi, last year i tested for celiac  my Tissu transglutaminase IgA lev was 20.3 U/ml but my Endomysial antibody IgA level was negative. I again tested just recently because i have symptoms of fatigue, bloating etc and my Tissu transglutaminase IgA lev was 26.5 but i again tested negative for my Endomysial antibody IgA level  I have now been referred so are waiting for an appointment where i suppose they’ll do a biopsy? Wanted to know could this mean i have coeliac, because its only ‘weakly’ negative considering the range is 0.0-14.9 or could it be something else      
    • HectorConvector
      Yeah I can increase the amount to 500mg/day and see what happens. I know I haven't been consistent enough in supplementing vitamins. 
    • Jmartes71
      Not yet, been waisting time on western doctors. I went yesterday to my pcp thought we were on same page, I gave him the downplayed confirmed celiac medical note from bay area. As a patient I shouldn't have to Chase my medical, my medical SHOULD stick to us.Im am so exhausted and angery how medical has been, my whole way of thinking of our system is completely changed.i wish I can upload my letter from KB 
    • knitty kitty
      @Jmartes71, Have you tried a naturopathic or holistic doctor?  Some posters in the past have commented theirs were more helpful than mainstream doctors.  
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