-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Leaderboard
Popular Content
Showing content with the highest reputation since 01/12/2010 in Blog Entries
-
More info about Vitamin Deficiencies
placey0918 and 4 others reacted to knitty kitty for a blog entry
I went through very similar symptoms, being misdiagnosed and told it was all in my head for most of my life. It's not all in our head. It's what's NOT in doctors' heads. Doctors don't think of vitamin deficiencies as causes of symptoms like we have. Doctors are trained to prescribe pharmaceuticals in medical institutions funded by pharmaceutical companies...5 points -
Dear Future Amy
IrishHeart and 3 others reacted to NotMollyRingwald for a blog entry
Dear Future Amy, I know you are doubting your intolerance/sensitivity to gluten. I'm sure, now that time has gone on, you're starting to doubt the trouble it has caused you. You have forgotten how very miserable your gluten challenge was, and have started allowing the if's and the but's and the maybe's into your mind. So, I'm writing to you now, to remind...4 points -
Health update
dianabanana and one other reacted to dixonpete for a blog entry
For long time followers of this blog will remember my account of my time at the start of my GI-trouble journey, which largely started in 2005-2008 when I was hit with an abscess, multiple corrective surgeries, ulcerative colitis and celiac disease. This was a particularly bad time in my life. After going gluten-free things got much better, I healed, but I...2 points -
Here are a few links other people may find useful. https://www.pnas.org/doi/10.1073/pnas.090405510 https://paleofoundation.com/gum-arabic/ https://www.cmghjournal.org/article/S2352-345X(21)00085-0/pdf https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6220847/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5811682/ https://pubmed.ncbi...2 points
-
Tylenol Gluten-free List
Tammy Fortner and one other reacted to Ashley for a blog entry
Dear Ashley, Thanks for visiting our website. In reference to your inquiry concerning the gluten content in our products, I have listed below the products which have been tested and do not contain detectable levels of gluten. The following McNeil products have been tested and do not contain detectable levels of gluten: Children's TYLENOL...2 points -
How Low B Vitamins can Trigger a Celiac disease diagnosis and be Mistaken for a Genetic Disease
Blue-Sky and one other reacted to Posterboy for a blog entry
How Low B Vitamins can Trigger a Celiac diagnosis and be Mistaken for a Genetic Disease To Whomever May Read This, (Thank you for taking the time to read it and I hope it helps you the way it did me! and if it does tell others....is all I ask)....because I know there are many more fellow sufferers still looking for answers... (because...2 points -
Van's Foods Voluntarily Recalls Gluten Free Waffles in Eleven States
Bpuckett1117 and one other reacted to Scott Adams for a blog entry
Van's Foods is voluntarily recalling approximately 1,584 cases of Van's Gluten Free Waffles with a lot code date of #A640234710–WL2, BEST BY AUG 22, 2018 and UPC CODE 8994730206. The products were distributed solely to food retailers in Arkansas, California, Colorado, Georgia, Illinois, Michigan, New Jersey, New York, Pennsylvania, Texas and Wisconsin. ...2 points -
The Gluten Contamination Elimination Diet (Summary Of Dr. Fasano's Recent Paper)
squirmingitch and one other reacted to jebby for a blog entry
As many of us already know, there are some celiacs who are “refractory” and continue to have ongoing symptoms after going gluten free. In addition, there are a bunch of us who are “super sensitive” in terms of reactions to gluten cross-contamination. I am one of the super sensitives. Not too long ago I had a reaction from eating one bite of a Trader Joe’s “...2 points -
Mast Cell Activation Syndrome Madness....
Irene Joanne and one other reacted to jebby for a blog entry
At this time last year I had never heard of mast cell activation syndrome (MCAS) and the first time that I heard the name I thought that it was a “made up” disease. Since then I have come to realize that it is a real diagnosis and I have learned a ton about it, including the following: MCAS is a newly recognized disease of the innate immune system (ou...2 points -
Most of the articles about gluten and celiac disease I’ve came across in the media have focused on symptoms related to digestion, such as abdominal pain and bloating after eating gluten, and damage to the small intestine. The bulk of the gluten-related discussions on the celiac forums I’ve perused concern questions and answers regarding the diagnosis of ...2 points
-
Hookwormed status report
John Scott reacted to dixonpete for a blog entry
Not much going on to report. My last inoculation of 25 Necator americanus hookworm larvae occurred April 11 2025, and I'm due to start incubating Aug 27 2026 and inoculate again with 25 larvae Sep 3 2025. Over the years I've seen my celiac/ulcerative colitis symptoms return six month-ish after inoculation, so I've settled on a frequency of a little less than...1 point -
Father, it's been some time since my last hookworm larvae innoculation
John Scott reacted to dixonpete for a blog entry
I did a 5-day fast in March that really messed up my stools making faecal sample collection problematic. Apparently I'm one of the few people that really need fiber always going through my system to prevent things going to hell, so next time I fast I'll be doing that even though it does break the spirit of fasting. Seven days ago I set up 5 small jars...1 point -
Well how about that!
John Scott reacted to dixonpete for a blog entry
I'm still trying my hand at hookworm incubation. This time I set 5 jars going all using the same method, namely small, hermetically sealable jars stuffed with a coffee filter smeared with a small amount of egg infected stool (mine) with about a 1/2 cm of mineral water at the base and left for 9 days. I made sure the filter paper always touched the water and...1 point -
A two for four incubation
John Scott reacted to dixonpete for a blog entry
Last week I set four small jars going, and today I gave them a look. Two of the jars were completely devoid of larvae. The other two were "B-" results, enough for inoculation but would require a fair amount of work collecting the larvae as the observed quantity was low. Think maybe 5% of best jars I've seen so far. I'm becoming convinced this is truly...1 point -
Day 10 post inoculation
John Scott reacted to dixonpete for a blog entry
Not much to report. My GI issues have all cleared up, but that's probably because I've gone gluten-free for the month of June. My entry wound has almost entirely healed. Aside from a touch of redness it should be 100% in a couple of days. That steroid cream made a huge difference, not in pain or discomfort really but certainly in aesthetics. Previously the...1 point -
Day 27 post inoculation
Celiacmanbill reacted to dixonpete for a blog entry
Being sick was a one-day thing. I did buy a gluten-free version of Quaker Oats oatmeal. I'll give it a go today and see if I do better. Celiacs can react to oats, so it's possible that was the source. For the record while fully hookwormed I've eaten hundreds of bowls of regular oatmeal without consequence. The clock is ticking, I hope, until my celiac days...1 point -
I'm back in remission
John Scott reacted to dixonpete for a blog entry
I've had plenty of gluten goodness sitting in my freezer for a month now and the siren call from them was too much for me to bear. A donut and a Crustini sacrificed themselves for science last night. Aside from a little gas I've had no reaction - just feeling fine. So that it's it, 30 days and I'm back in remission. I apologize for the dramatics but...1 point -
Other Helminthic Therapy blogs
John Scott reacted to dixonpete for a blog entry
Hookworms and the three other helminths are used for a variety of immune conditions, not just celiac disease. John Scott just pointed me towards a collection of blogs like mine where people discuss their experiences at length like I do: https://helminthictherapywiki.org/wiki/Helminthic_therapy_blogs?fbclid=IwAR0U6tvguzLaQ0Tl-0gwC-zMPkJrMKIn2tZk018iHiDGuN...1 point -
Detailed study of hookworms as therapy calls it feasible, safe, and well-tolerated
John Scott reacted to dixonpete for a blog entry
https://doi.org/10.1093/ibd/izad110 Published June 15, 2023 in the journal of Inflammatory Bowel Diseases, this study is expressly for ulcerative colitis, but because the focus was on safety and tolerance of hookworms as a treatment, the results should apply for any of the myriad conditions people use hookworms to treat. It's a pilot study paving the...1 point -
Inoculation was delayed but luckily completed
John Scott reacted to dixonpete for a blog entry
About 10 days ago I was called away out of my city on a family emergency. I had to leave on a Sunday, just before the courier with my hookworms were to arrive. I was frantic because were they to be sent back or lost I might not be able to get more until the spring as larvae often are killed in the cold weather. If that happened, I would soon have to go gluten...1 point -
Kettle River Products Recalls Chicken Alfredo Pizza Products Due to Undeclared Wheat
Tammy1969 reacted to Scott Adams for a blog entry
Kettle River Products, an Askov, Minn., establishment, is recalling approximately 1,464 pounds of chicken alfredo pizza due to misbranding and an undeclared allergen, the U.S. Department of Agriculture’s Food Safety and Inspection Service (FSIS) announced today. The product contains wheat, a known allergen, which is not declared on the product label. ...1 point -
From Spoil-Sport to Super Woman! Tale of a Mother's Reversal!
LisaSan111 reacted to 1desperateladysaved for a blog entry
In the beginning of my celiac journey; I expected that my biological children may also have celiac disease. I urged for the whole family to use caution and do a trial gluten free. Because of my super-sensitivity to gluten, we created two kitchens. Now, a decade has gone by. My 5 children grew up and flew the coop. Not one of them has opted to be tested...1 point -
Waterbridge Wine Gums
Scott Adams reacted to Yvonne (Vonnie) Mostat, RN for a blog entry
We have always bought our wine gums from England through Maynards, and they are gluten free. But this time, having limited shopping time we purchased some Waterbridge Winegums, Imported by IMPORTE PAR. BUT IS IS ALSO FROM ENGLAND -www.waterbridge.net. Similar price but we purchased it from HOME SENSE, A CONNECTION to WINNER. its third ingredient is WHEAT...1 point -
Genetics Nutrition and Stress the Threeway Model of How Gluten Triggers an Immune Reaction in Severely Malnourished IE Vitamin Deficient Individuals consuming a High Calorie Diet This blog post is WTL again....I tried breaking it into to two Posterboy Blog posts but decided to go ahead.... And post it instead as one due to other things IRL...1 point
-
A Case for Thiamine Supplemenation in Celiacs IF only for a Season in Time
knitty kitty reacted to Posterboy for a blog entry
A Case for Thiamine Supplementation in Celiac’s IF only for a Season in Time I have been doing Posterboy blog posts every so often now for a while now to share my experience with supplementation. I have settled on the fact that many of the existing GI issues can triggered by existing nutritional deficiencies. ((I think most people must think I...1 point -
Good news. And some average news.
cyclinglady reacted to Keight for a blog entry
I finally had my blood work done. All micros, except iron, are well in the upper ranges of normal. Woot! I guess that means intestines are healing. Fatigue still plagues me, though. Not as much as it used to, but I feel only 25% better. The average news is my ALT and AST levels are sitting just above the upper range of normal. I have to now have...1 point -
Been working on this for the past 4 days and got it about perfect. 120g (1 cup) Almond Flour 100g (1/2 cup) Swerve Granular (Erythritiol) 2tbsp Flax Meal 2 tsp Baking Powder 2 tsp Cinnamon Powder 1tsp Ginger Powder 1/4 tsp Nutmeg Powder 1/4 tsp Salt 60g (1/2 cup) Chopped Walnuts 1/2 Cup Melted Nutivia Butter Flavored Coconut Oil ...1 point
-
G'day to you. Nice to see you here. I'm Keight; a middle aged woman from Australia. I am a truck mechanic by trade and I have two teen sons, who are the light of my life. As a baby, I had massive intestinal issues and could not hold down the baby formulas on the market at that time. Eventually, I was given a mix of evaporated milk and vitamin drops...1 point
-
So here I was wanting a healthy take on Eggnog I could drink without stomach issues, this is a recipe for HOT eggnog as cooling it leads to separation without an emulsifying agent. Been drinking this for days. 2 Cups Cashew Milk, or thick and creamy almond milk (HEB Organic Almond Milk) 2/3 Egg Whites (pasteurized...1 point
-
So I had my follow up appointment with my new GI to go over my pathology report. There are no signs of celiac or UC, he said there were no medications he needed to prescribe and that my treatment regime was working great. He suggested my random digestive issues could be a new sensitivity or a intolerance or even hormone related like with insulin. He was...1 point
-
Open Letter to the many GI sufferers etc Part 1’ Like IBS, UC and other GI diseases like Infant Heartburn (GERD) that grows into (in time) to IBS, UC, Chron’s and NCGS as a teenager or Celiac disease in time as an adult— Look Beyond these symptom’s to the parent disease –- Pellagra. *** a couple of notes to begin with. You can see I...1 point
-
The beginning
return-again reacted to Mharzbarz9959 for a blog entry
Last year in 2017 around October I decided to start a gluten free and dairy free diet because I had been feeling really ill when I ate gluten. It was hard because my friends all ate gluten (like a lot of people) and I had to watch them eat pizza and sandwhiches and cakes etc . I felt like I was really missing out and I hated that I couldnt eat all the foods...1 point -
This is my old recipe for a grain free pie crust, add 1-2tsp cinnamon to get a gram crust. PS doing this in a flat pan is great for gram crackers. Cooking oil or parchment paper 2 cups almond flour 1/4 tsp. salt plus1/8 tsp. salt Pinch of stevia 2 Tbsp. plus 2 tsp. coconut oil, melted 2 Tbsp. pure maple syrup/sugar free alternative like...1 point
-
July Thoughts and Updates
Victoria1234 reacted to Ennis-TX for a blog entry
Well I got a type of icecream machine, it is a rolled ice maker. I am looking at marketing it at the local farmers market starting next week. My base is dairy free, blend of almond milk, coconut full fat canned milk, maple syrup, and LorAnn Icecream flavors. Toppings and filling to chop into it include Enjoy Life Cookies, My own baked goods, Lets go Gluten...1 point -
3 Weeks And Still Trying For 100% Gluten-Free
katiesalmons reacted to badcasper for a blog entry
I never really knew what was wrong with me, but I always knew I didn't like a lot of foods. Some I didn't like because I had strange reactions to them. I have not been diagnosed but the change in my diet is amazing. I just changed my vitamins and wow, its like they work. My aches and pains have improved. my energy level is back to normal. Im trying very hard...1 point -
Tears In The Grocery Store Again.
Hoos reacted to 1desperateladysaved for a blog entry
At the grocery store the other day, I checked out the meats. I noticed a package of turkey breast, which I use to frequently buy before I found out I had allergies to it. I absently passed on by.. I got a few feet away and stopped dead. "Wait" I told myself; I can have turkey! I turned and took a couple of steps back. Oh, right, I thought as I turned away...1 point -
Colonoscopy
Scott Adams reacted to moosemalibu for a blog entry
Well... my diarrhea has continued and not improved despite resolution of most of my other celiac symtoms. I'm going in to be tested for microscopic colitis next month. I just want to have a normal phucking bowel movement. It's been soo long I don't even remember what one looks or feels like! Hoping for answers.1 point -
I think most of us have met people who have symptoms of celiac disease, but when tested, are told that their celiac antibody blood tests and biopsy results are negative (normal). Some of these people are labeled “gluten intolerant” or “gluten sensitive” by their doctors, others are told they may have “early” celiac disease, or “pre” celiac disease, and th...1 point
-
Gluten-Related Neurologic Symptoms In Children
Glutens gotta go reacted to jebby for a blog entry
There is a well-established relationship between celiac disease (and non-celiac gluten sensitivity) and the development of neurologic problems in adults. According to Dr. Marios Hadjivassiliou, a neurologist in the UK who is one of the world’s experts in this area, up to 50% of adults with newly diagnosed celiac disease have signs or symptoms of neurological p...1 point -
A Little About Myself.
w8in4dave reacted to EmilyLinn7 for a blog entry
Hi, my names Emily I'm 15 and I live in Upstate New York. I was fully diagnosed with celiac in March. My little sister has it too. This blog is to spread the information I get to others. If you have any questions or just want to talk feel free too.1 point -
Celiac Disease And Pregnancy
sweetpeas327 reacted to jebby for a blog entry
Although I am pretty sure that I had Celiac Disease for more than two decades before my diagnosis, I was not diagnosed until after my 3rd child was born. Looking back, my diet during my first 3 pregnancies was a gluten-filled nightmare. I am actually glad that I have no idea how sky-high my celiac antibodies probably were while I was pregnant with my oldest...1 point -
Roasted Veggies - As Per Suggested By Cyclinglady
moosemalibu reacted to Rowena for a blog entry
This was a very simple recipe to make, and it doesn't bother me at all. 1 large sweet potato - chopped into large pieces 2 standard size Idaho Potatoes - chopped into large pieces 1 beet - chopped into large pieces 1 handful baby carrots (or 2 whole carrots. You can add more if you like, but I'm not a huge fan of roasted carrots) Italian Seasoning...1 point -
There are many of us with celiac disease who develop additional food intolerances after going gluten free. Despite maintaining control of my celiac symptoms by being strictly gluten free, I have become intolerant to soy (2011), sulfites (2012), and too much dairy (late 2012-early 2013). My allergy skin prick tests for soy and milk were negative, which shows...1 point
-
Do I Hide It Well, Or What? 30 Years Of Untreated Celiac: Piece Of Cake?
Klb1956 reacted to 1desperateladysaved for a blog entry
Yesterday, my family went to a prayer meeting for a friend with vasculitis, an Auto Immune disease. He has had very obvious problems and was hospitalized twice and once it was for a very long time. The prayer meeting was patterned after James 5. (Bible) After arriving home, my husband talked with the children if they thought a prayer meeting like that...1 point -
Non Celiac Gluten Sensitivity
ButterflyChaser reacted to jebby for a blog entry
Yes, this is a real diagnosis, and it effects between 6 to 8% of our population, or approximately 18 million people. Many doctors and patients are unaware that it exists. Most of the papers on this topic have only been published in the last 2-3 years. The British Medical Journal published a case study and review of gluten sensitivity in their November 30...1 point -
Cross Contamination Ocd!
1desperateladysaved reacted to gancan for a blog entry
Next week will be my 4th month gluten free and I have only recently discovered how badly my body reacts to any cross contamination. The first time it happened (and last time! so far..) I had made my dinner completely gluten free. Then I made my daughters lunches for the next morning, some rice pilaf and cut up meat, and while cutting up the meat some...1 point -
Eosinophilic Esophagitis, also known as “EE,” is a gastrointestinal disorder that, like Celiac Disease, seems to be increasing in frequency of diagnosis. I first heard of EE when I was in my pediatric residency. I worked with a Pediatric GI specialist who seemed to diagnose all of his infant patients with gastroesophageal reflux (GERD) with EE. While I w...1 point
-
Mommy, Your Dress Is Too Big.
jordan shulak reacted to 1desperateladysaved for a blog entry
I have always emphasized eating to be healthy and did not focus on my weight or figure. I am somewhere around a month (?) into my rotational diet and also began pancreatic enzymes and vitamin B recently. My weight began at around 200 6 years back. I lost 30 lbs when I began a supplement program with my chiropractor. My weight had become relatively stable...1 point -
My pot roast: I don't like adding a bunch of liquid so I choose a crockpot where the meat fits snugly. I usually use my 3-quart crockpot because I try to get a smallish chuck roast. Brown the meat in a skillet if you have time. Put the roast in the crockpot and pour in a little red wine so it comes to the top of the roast. If the roast fits snugly...1 point
-
I have been sick a lot of this year and I never know why, I went to see the doctor. The doctor tells me they don't know what is wrong with me, then I went to see a special doctor that's when good things is starting out nice, since I finely find the answer I am looking for my sickness and I give the doctor my blood test they find out I have Celiac Disease...1 point
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.4k
-
Total Posts1m
-
-
Celiac.com Sponsor (A22):
-
Who's Online (See full list)
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
Posts
-
Hi Theresa, A few of my friends have your same story. You may be right about barley, etc. 18 years ago at a football game while clapping, suddenly my 4th finger was in agony. It looked like a vein had burst. It was blue for a couple hours, then disappeared. Finally realized it happened every time when drinking beer. It's occurred several times over the years when opening a jar, lifting something that was a bit heavy, holding on to tight to something. Immediate icing stops the pain and discoloration. Now avoiding wheat in the US, it rarely happens. Thanks for the reminder. Will have Entero Labs run another test. Unfortunately they've relocated to Switzerland/Greece.
-
The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
-
By Theresa2407 · Posted
Maybe you have a low intolerance to Wheat. Rye, Barley and Malt are the gluten in Celiac disease. It has always been stated Wheat and Gluten, not just a Wheat intolerance. Barley will keep me in bed for (2) weeks. Gut, Migrains, Brain fog, Diahrea. It is miserable. And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow. Boy was he off. But at that time the US didn't know anyone about Celiac. This was the 1940s and 50s. I had my first episode at 9 months and did not get a diagnosis until I was 50. My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product. It was mostly the cereal industry. 3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction. -
Thanks much Scott. Well said, and heeded. I don't have Celiac, which is fortunate.
-
By Scott Adams · Posted
Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that? Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
-
