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Showing content with the highest reputation since 01/12/2010 in Blog Entries
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More info about Vitamin Deficiencies
placey0918 and 4 others reacted to knitty kitty for a blog entry
I went through very similar symptoms, being misdiagnosed and told it was all in my head for most of my life. It's not all in our head. It's what's NOT in doctors' heads. Doctors don't think of vitamin deficiencies as causes of symptoms like we have. Doctors are trained to prescribe pharmaceuticals in medical institutions funded by pharmaceutical companies...5 points -
Dear Future Amy
IrishHeart and 3 others reacted to NotMollyRingwald for a blog entry
Dear Future Amy, I know you are doubting your intolerance/sensitivity to gluten. I'm sure, now that time has gone on, you're starting to doubt the trouble it has caused you. You have forgotten how very miserable your gluten challenge was, and have started allowing the if's and the but's and the maybe's into your mind. So, I'm writing to you now, to remind...4 points -
Health update
dianabanana and one other reacted to dixonpete for a blog entry
For long time followers of this blog will remember my account of my time at the start of my GI-trouble journey, which largely started in 2005-2008 when I was hit with an abscess, multiple corrective surgeries, ulcerative colitis and celiac disease. This was a particularly bad time in my life. After going gluten-free things got much better, I healed, but I...2 points -
Here are a few links other people may find useful. https://www.pnas.org/doi/10.1073/pnas.090405510 https://paleofoundation.com/gum-arabic/ https://www.cmghjournal.org/article/S2352-345X(21)00085-0/pdf https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6220847/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5811682/ https://pubmed.ncbi...2 points
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Tylenol Gluten-free List
Tammy Fortner and one other reacted to Ashley for a blog entry
Dear Ashley, Thanks for visiting our website. In reference to your inquiry concerning the gluten content in our products, I have listed below the products which have been tested and do not contain detectable levels of gluten. The following McNeil products have been tested and do not contain detectable levels of gluten: Children's TYLENOL...2 points -
How Low B Vitamins can Trigger a Celiac disease diagnosis and be Mistaken for a Genetic Disease
Blue-Sky and one other reacted to Posterboy for a blog entry
How Low B Vitamins can Trigger a Celiac diagnosis and be Mistaken for a Genetic Disease To Whomever May Read This, (Thank you for taking the time to read it and I hope it helps you the way it did me! and if it does tell others....is all I ask)....because I know there are many more fellow sufferers still looking for answers... (because...2 points -
Van's Foods Voluntarily Recalls Gluten Free Waffles in Eleven States
Bpuckett1117 and one other reacted to Scott Adams for a blog entry
Van's Foods is voluntarily recalling approximately 1,584 cases of Van's Gluten Free Waffles with a lot code date of #A640234710–WL2, BEST BY AUG 22, 2018 and UPC CODE 8994730206. The products were distributed solely to food retailers in Arkansas, California, Colorado, Georgia, Illinois, Michigan, New Jersey, New York, Pennsylvania, Texas and Wisconsin. ...2 points -
The Gluten Contamination Elimination Diet (Summary Of Dr. Fasano's Recent Paper)
squirmingitch and one other reacted to jebby for a blog entry
As many of us already know, there are some celiacs who are “refractory” and continue to have ongoing symptoms after going gluten free. In addition, there are a bunch of us who are “super sensitive” in terms of reactions to gluten cross-contamination. I am one of the super sensitives. Not too long ago I had a reaction from eating one bite of a Trader Joe’s “...2 points -
Mast Cell Activation Syndrome Madness....
Irene Joanne and one other reacted to jebby for a blog entry
At this time last year I had never heard of mast cell activation syndrome (MCAS) and the first time that I heard the name I thought that it was a “made up” disease. Since then I have come to realize that it is a real diagnosis and I have learned a ton about it, including the following: MCAS is a newly recognized disease of the innate immune system (ou...2 points -
Most of the articles about gluten and celiac disease I’ve came across in the media have focused on symptoms related to digestion, such as abdominal pain and bloating after eating gluten, and damage to the small intestine. The bulk of the gluten-related discussions on the celiac forums I’ve perused concern questions and answers regarding the diagnosis of ...2 points
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Vitamins I Take
Scott Adams reacted to knitty kitty for a blog entry
I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease. Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible. (Read the ingredients listing.) Thiamine Mononitrate is the "shelf-stable" form of B...1 point -
Nutrition and Gluten free diet
Scott Adams reacted to knitty kitty for a blog entry
Effect of physical activity on thiamine, riboflavin, and vitamin B-6 requirements https://pubmed.ncbi.nlm.nih.gov/10919966/ The effects of endurance training and thiamine supplementation on anti-fatigue during exercise https://pmc.ncbi.nlm.nih.gov/articles/PMC4241913/ Effects of thiamine supplementation on exercise-induced fatigue https...1 point -
Hookworms and ChatGPT5
John Scott reacted to dixonpete for a blog entry
I recently sprang for a ChatGPT5 subscription just to play with it and have found it to be a revelation. ChatGPT5 has become my new best friend helping me to explore and answer questions that have been nagging me sometimes for years. Of course our conversation turned to hookworms and celiac disease as well as my other condition, ulcerative colitis. ChatGPT...1 point -
Hookwormed status report
John Scott reacted to dixonpete for a blog entry
Not much going on to report. My last inoculation of 25 Necator americanus hookworm larvae occurred April 11 2025, and I'm due to start incubating Aug 27 2026 and inoculate again with 25 larvae Sep 3 2025. Over the years I've seen my celiac/ulcerative colitis symptoms return six month-ish after inoculation, so I've settled on a frequency of a little less than...1 point -
Father, it's been some time since my last hookworm larvae innoculation
John Scott reacted to dixonpete for a blog entry
I did a 5-day fast in March that really messed up my stools making faecal sample collection problematic. Apparently I'm one of the few people that really need fiber always going through my system to prevent things going to hell, so next time I fast I'll be doing that even though it does break the spirit of fasting. Seven days ago I set up 5 small jars...1 point -
Kyla's YouTube channel
John Scott reacted to dixonpete for a blog entry
Followers of my blog probably watched Kyla's interview with William Porter from a few months ago. What might have slipped notice is that Kyla has her own YouTube channel where she posts videos about her experiences with Helminthic Therapy and Crohn's Disease. Spoilers, she's about 90% better because of HT. Kyla is very active on Instagram where her page is...1 point -
The crux of hookworm incubation
John Scott reacted to dixonpete for a blog entry
When I first got into hookworms to treat my several severe GI immune conditions, I was confused and filled with trepidation. Six years later, it all seems pretty simple, but I suppose perhaps everything is like that when you are starting out. The first step is to purchase larvae from a provider listed in the Helminthic Therapy Wiki and when they arrive...1 point -
Incubation starts tomorrow
John Scott reacted to dixonpete for a blog entry
I now have all my supplies and my microscope. I ended up buying a better one than I had planned because after doing extensive reading I decided I wanted a dissecting scope, and I justified the extra money by considering it a lifetime investment since I'll be using it for probably the next 20 or so years. Incubation will begin tomorrow and harvesting...1 point -
Wegmans Food Markets, Inc. Issues Allergy Alert on Outrageous Oat Cookies for Undeclared Wheat
LovintheGFlife reacted to Scott Adams for a blog entry
Wegmans has initiated a voluntary recall of Outrageous Oat Cookies purchased from its in-store bakeries starting on January 3, 2024, because they may contain undeclared wheat. People who have an allergy or severe sensitivity to wheat run the risk of serious or life-threatening allergic reaction if they consume this product. These products are sold at...1 point -
Day 27 post inoculation
Celiacmanbill reacted to dixonpete for a blog entry
Being sick was a one-day thing. I did buy a gluten-free version of Quaker Oats oatmeal. I'll give it a go today and see if I do better. Celiacs can react to oats, so it's possible that was the source. For the record while fully hookwormed I've eaten hundreds of bowls of regular oatmeal without consequence. The clock is ticking, I hope, until my celiac days...1 point -
Detailed study of hookworms as therapy calls it feasible, safe, and well-tolerated
John Scott reacted to dixonpete for a blog entry
https://doi.org/10.1093/ibd/izad110 Published June 15, 2023 in the journal of Inflammatory Bowel Diseases, this study is expressly for ulcerative colitis, but because the focus was on safety and tolerance of hookworms as a treatment, the results should apply for any of the myriad conditions people use hookworms to treat. It's a pilot study paving the...1 point -
Kettle River Products Recalls Chicken Alfredo Pizza Products Due to Undeclared Wheat
Tammy1969 reacted to Scott Adams for a blog entry
Kettle River Products, an Askov, Minn., establishment, is recalling approximately 1,464 pounds of chicken alfredo pizza due to misbranding and an undeclared allergen, the U.S. Department of Agriculture’s Food Safety and Inspection Service (FSIS) announced today. The product contains wheat, a known allergen, which is not declared on the product label. ...1 point -
More about Vitamin Deficiencies
Wheatwacked reacted to knitty kitty for a blog entry
Supplementing with the eight essential B vitamins can help stop gluten cravings. Wheat products are required by law to be enriched with vitamins and minerals lost in processing. In other words, wheat products have vitamins added to them. Celiac Disease damages the small intestine where the B vitamins are normally absorbed. We often do not get...1 point -
Finally I know the cause of all my problems at last, Lactose !!!
Posterboy reacted to Jackie Garrett for a blog entry
I can’t believe it now at 52 years old I know at long last the thing that I was always told was good for me was actually not, it was making me ill and I continued all these years putting up with Hives when I was younger, and then bloating, wind and slight bladder incontinence, Fibromyalgia, tingling and numb fingers (Carpel tunnel Syndrome )) overweight e...1 point -
Genetics Nutrition and Stress the Threeway Model of How Gluten Triggers an Immune Reaction in Severely Malnourished IE Vitamin Deficient Individuals consuming a High Calorie Diet This blog post is WTL again....I tried breaking it into to two Posterboy Blog posts but decided to go ahead.... And post it instead as one due to other things IRL...1 point
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A Case for Thiamine Supplemenation in Celiacs IF only for a Season in Time
knitty kitty reacted to Posterboy for a blog entry
A Case for Thiamine Supplementation in Celiac’s IF only for a Season in Time I have been doing Posterboy blog posts every so often now for a while now to share my experience with supplementation. I have settled on the fact that many of the existing GI issues can triggered by existing nutritional deficiencies. ((I think most people must think I...1 point -
is Cheerios gluten free
DontEatFrenchFries reacted to Melissa Mandrick for a blog entry
A few years ago cheerios had aired commercial saying that the cereal is gluten free by removing the wheat germ in in the gain. I don't get it I thought about cross-contamination .just because you remove it. I wish companies were not aloud to say the are gluten free because their factories aren't. For people who eat gluten and revive pain and damage from...1 point -
Good news. And some average news.
cyclinglady reacted to Keight for a blog entry
I finally had my blood work done. All micros, except iron, are well in the upper ranges of normal. Woot! I guess that means intestines are healing. Fatigue still plagues me, though. Not as much as it used to, but I feel only 25% better. The average news is my ALT and AST levels are sitting just above the upper range of normal. I have to now have...1 point -
So here I was wanting a healthy take on Eggnog I could drink without stomach issues, this is a recipe for HOT eggnog as cooling it leads to separation without an emulsifying agent. Been drinking this for days. 2 Cups Cashew Milk, or thick and creamy almond milk (HEB Organic Almond Milk) 2/3 Egg Whites (pasteurized...1 point
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2 weeks of working on it and I got the recipe down, just featured them at a farmers market and sold out. Makes 10 4" bagels. in grams, so you can half or quarter the recipe. 3 Cups (360g) Almond Flour 1/2 Cup (56g) Flax Meal 2 tbsp (14g) Coconut Flour 2 tsp Baking Soda 2 tsp Baking Powder 1/2 tsp salt 10 eggs 1/4 cup (60ml) Apple Cider...1 point
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So I got a good deal at a restaurant auction for a prep center brand new at 1/30th retail. Seems the manufacturer of the custom unit forgot something looking at design notes....it was supposed to be modular to fit in a building. Well it is one solid 97"x48" stainless unit welded to a steel frame, which requires removing my door, removing the door frame, and...1 point
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So I had my follow up appointment with my new GI to go over my pathology report. There are no signs of celiac or UC, he said there were no medications he needed to prescribe and that my treatment regime was working great. He suggested my random digestive issues could be a new sensitivity or a intolerance or even hormone related like with insulin. He was...1 point
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Keto Cinnamon Rolls
SadAndSick reacted to Ennis-TX for a blog entry
4 tries, and this is satisfyingly close to gluten ones....still missing that yeasty and gooyness of the raw center ones of my childhood, but I still binge ate 3. Any suggestions for improving Rise or making a bit more gooy I would love to hear. Dough 220g Almond Flour 28g Coconut Flour 2 Large Eggs (ROOM TEMP or the oil will harden up) ...1 point -
Everything goes downhill....
return-again reacted to Mharzbarz9959 for a blog entry
So, mid march 2018 and I go on a family holiday away from home. I was now beggining to grow bored of my gluten free diet so what did I decide to do?.... be an idiot and eat gluten while we were on that holiday! So I ate gluten every day and at first I felt okay... not too great but barely noticeable. Then i started to get more and more symptoms back but...1 point -
The beginning
return-again reacted to Mharzbarz9959 for a blog entry
Last year in 2017 around October I decided to start a gluten free and dairy free diet because I had been feeling really ill when I ate gluten. It was hard because my friends all ate gluten (like a lot of people) and I had to watch them eat pizza and sandwhiches and cakes etc . I felt like I was really missing out and I hated that I couldnt eat all the foods...1 point -
Thoughts on a Star Trek Episode
Victoria1234 reacted to Ennis-TX for a blog entry
As a adult I have started re watching all the Star Trek Episodes, Most from the Original, TNG, DS9 episodes all cover interesting issues and different takes on issues with humanity from a different point of view and perspective. I have found this to be very intriguing to say the least. Anyway I finally got around to re watching the original and am on the...1 point -
3 Weeks And Still Trying For 100% Gluten-Free
katiesalmons reacted to badcasper for a blog entry
I never really knew what was wrong with me, but I always knew I didn't like a lot of foods. Some I didn't like because I had strange reactions to them. I have not been diagnosed but the change in my diet is amazing. I just changed my vitamins and wow, its like they work. My aches and pains have improved. my energy level is back to normal. Im trying very hard...1 point -
Constant aches and pains. I always have a stomach ache, my knees hurt, I want to go to bed by 8pm and I'm taking ibuprofens a few times a week to help my headaches. On top of that, at week 5, I started to develop this facial rash that is intensely itchy on my jaw bone and is red and blotchy on my whole cheek area. It almost looks like psoriasis. Can DH appear...1 point
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Thanksgiving Went Well
0range reacted to 1desperateladysaved for a blog entry
This year a doctor told me not to eat anywhere but home. My body is acting super-sensitive and I didn't want to rock the boat. I alerted my sister, the hostess, and my brother that I would be unable to eat at the gathering, but would eat on the way there. On the way there I enjoyed my very filling rice and beef casserole. I had planned to do a regular...1 point -
My Friend: Pain!
moosemalibu reacted to 1desperateladysaved for a blog entry
Before I diagnosis, I did not feel celiac pain. I would notice my tummy bloating, my legs swelling, and have a pregnant looking belly. I had extreme fatigue and foggy mind, but didn't realize those until it went away one day. I trudged on with these mysterious symptoms that were "All in my head." Wondering in my dreamy state if something possibly was wrong...1 point -
Celiac Disease And Pregnancy
sweetpeas327 reacted to jebby for a blog entry
Although I am pretty sure that I had Celiac Disease for more than two decades before my diagnosis, I was not diagnosed until after my 3rd child was born. Looking back, my diet during my first 3 pregnancies was a gluten-filled nightmare. I am actually glad that I have no idea how sky-high my celiac antibodies probably were while I was pregnant with my oldest...1 point -
Roasted Veggies - As Per Suggested By Cyclinglady
moosemalibu reacted to Rowena for a blog entry
This was a very simple recipe to make, and it doesn't bother me at all. 1 large sweet potato - chopped into large pieces 2 standard size Idaho Potatoes - chopped into large pieces 1 beet - chopped into large pieces 1 handful baby carrots (or 2 whole carrots. You can add more if you like, but I'm not a huge fan of roasted carrots) Italian Seasoning...1 point -
You Can Lead A Body To Nutrients, But Can You Make It Take Them In?
Chaff reacted to 1desperateladysaved for a blog entry
Source: I Am New To Pancreatic Enzymes And Recently Started Rotational Diet1 point -
Mommy, Your Dress Is Too Big.
jordan shulak reacted to 1desperateladysaved for a blog entry
I have always emphasized eating to be healthy and did not focus on my weight or figure. I am somewhere around a month (?) into my rotational diet and also began pancreatic enzymes and vitamin B recently. My weight began at around 200 6 years back. I lost 30 lbs when I began a supplement program with my chiropractor. My weight had become relatively stable...1 point -
I'm thinking not. Not only an I a celiac but I'm also lactose intolerant. It is ridiculous how sick I get when I have dairy. It feels as if I drank rotten milk or have food poisoning. So, every time that I get my period, I get that feeling and I always take Midol with no help. If anything, it makes me even more sick to the point where I'm doubled...1 point
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:( I thought that the itching in my hands, stomach area, feet and toes was due to some rare, unmanageable peripheral neural damage disease. That's what my allopath doc says. I'm learning slowly the limits to allopathic medicine: if the trouble is not a pathogen or some huge physical catastrophe, they often don't understand the trouble. So what...1 point
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Heal Gut With Slippery Elm And Marshmallow Root
Sandi Smith reacted to YoloGx for a blog entry
Hi, I am new to this site. But as I wait for my organic chicken to bake for a Thanksgiving feed with my boyfriend I thought I'd start this blog. I have found that herbs and other supplements have helped heal a great many of my symptoms along with of course avoiding all gluten. Given my apparent success at healing myself, I have been invited to speak...1 point -
Get Over Yourself, Rachael Ray!
wubbie1212 reacted to brendygirl for a blog entry
All I can say about the Rachael Ray Cookbook, 365 and No Repeats! (written in a slang-laden, simplicity-encouraging, style that caters (pardon the pun) to User-Friendliness), is that RR has forgotten a few things now that she's ubiquitously uber famous: We don't have sous chefs to chop, dice, and julienne everything, so it doesn't take only 35 minutes prep...1 point -
I am so happy to have to started my blog on Celiac.com. Since I have started my gluten free diet one of the most important things is to find a bread that is not filled with starch and white rice. This was so important for me so that I did not gain weight when making the complete change to be gluten free. THe problem with so many breads today is they...1 point
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A Good Gluten Free Bar?
Jersey Shore wheat no more reacted to Jersey Shore wheat no more for a blog entry
Looking for a good gluten free bar for my daughter. We have tried different ones and so far we have not found one that she likes ...any suggestions?1 point
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So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
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I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
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By xxnonamexx · Posted
Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank -
I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful thanks
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