-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
8,787 topics in this forum
-
- 0 replies
- 911 views
-
- 7 replies
- 2.6k views
-
- 23 replies
- 3.4k views
-
- 5 replies
- 1.7k views
-
- 31 replies
- 4.2k views
-
- 3 replies
- 1.8k views
-
- 5 replies
- 4.2k views
-
- 7 replies
- 1.9k views
-
- 17 replies
- 8.3k views
-
Celiac.com Sponsor (A10):
Celiac.com Sponsor (A10):
-
- 8 replies
- 2.1k views
-
- 2 replies
- 3.1k views
-
- 0 replies
- 1.3k views
-
- 3 replies
- 2.1k views
-
- 5 replies
- 1.9k views
-
- 0 replies
- 957 views
-
- 5 replies
- 2.7k views
-
- 21 replies
- 5.6k views
-
- 2 replies
- 1.4k views
-
- 1 reply
- 1k views
-
- 9 replies
- 12k views
-
- 12 replies
- 14.6k views
-
- 7 replies
- 3.3k views
-
- 9 replies
- 14.7k views
-
- 1 reply
- 1.7k views
-
- 28 replies
- 5.4k views
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8-M):
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- trents replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5Refractory Celiac disease - what to do
When you say you have been in an "entirely gluten-free household" since January of 2025" does that include making sure you have checked that all medications, supplements and oral hygiene products are gluten free? I can also tell you that for some people, it can take several years for their antibody numbers to normalize. -
- trents replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5
Refractory Celiac disease - what to do
I believe you are falsely concluding that elevated tTG-IGA/tTG-IGG levels can only be caused by celiac disease. I will offer a link here to an article outlining the various blood antibody tests that can be used to diagnose celiac disease. Each one them has less than a 100% specificity for celiac disease: -
- ehb replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5Refractory Celiac disease - what to do
thank you @trents ! I am reading through these, and it gives some clarity on the other possible causes of villous atrophy, but given that I still have high ttg levels, I am thinking that the most likely cause is still the celiac disease, and any treatments for other causes would not address the increased ttg levels and villous atrophy caused by that? -
- trents replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5
Refractory Celiac disease - what to do
Welcome to the forum, @ehb! This might be helpful: https://www.verywellhealth.com/villous-atrophy-562583 and this: https://www.mayoclinicproceedings.org/article/S0025-6196(17)30892-3/fulltext -
- ehb replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease27
Supplements for those Diagnosed with Celiac Disease
Hi Scott, I am wondering how you came to this extensive list of vitamins? I just took a blood test and was low on a few items, so I am thinking about taking a multi vitamin, but I would prefer to have a doctor or professional guide me on which ones to take to help with the deficiencies. There is so much conflicting information, I don't know where to...
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.3k
-
Total Posts1m
-
-
Celiac.com Sponsor (A22):
-
Who's Online (See full list)
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
Posts
-
I believe you are falsely concluding that elevated tTG-IGA/tTG-IGG levels can only be caused by celiac disease. I will offer a link here to an article outlining the various blood antibody tests that can be used to diagnose celiac disease. Each one them has less than a 100% specificity for celiac disease:
-
thank you @trents ! I am reading through these, and it gives some clarity on the other possible causes of villous atrophy, but given that I still have high ttg levels, I am thinking that the most likely cause is still the celiac disease, and any treatments for other causes would not address the increased ttg levels and villous atrophy caused by that?
-
Welcome to the forum, @ehb! This might be helpful: https://www.verywellhealth.com/villous-atrophy-562583 and this: https://www.mayoclinicproceedings.org/article/S0025-6196(17)30892-3/fulltext
-
Hi Scott, I am wondering how you came to this extensive list of vitamins? I just took a blood test and was low on a few items, so I am thinking about taking a multi vitamin, but I would prefer to have a doctor or professional guide me on which ones to take to help with the deficiencies. There is so much conflicting information, I don't know where to begin. Thank you!
-
Some other things to note and that I am wondering about is that my Mom has Chron's disease and I am wondering if that could interact here somehow. I am also wondering if I should do some form of genetic testing and what the benefit of this would be? Could this tell me my risk for developing Sprue or Lymphoma? I am very worried about this developing into Lymphoma, and wondering if that's a common thing that happens in these cases?
-
