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    • N00dnutt
      @Knitty_Kitty Noted with appreciation.
    • trents
      @N00dnutt, as OP explained earlier, she had a gastroscopy done earlier while she had been eating plenty of gluten for months. It was negative despite strong positive antibody scores.
    • N00dnutt
      The best way to determine positively is to undergo a Gastroscope. Your Endocrinologist will assess the condition of your "Villi". These tenticles are what extract the nutrient from what we ingest. The Protein in Gluten is like acid to these tenticles.
    • trents
      It occurs to me that this might be a good application for gluten test kits, since the test kits seem to require samples in power form and pills can easily be rendered in that form. According to this article, and it seems to be current, there are three choices when it comes to gluten test kits: https://www.verywellhealth.com/gluten-detectors-and-test-kits-comparing-the-options-4126736 While it is not an inexpensive solution, at least it shouldn't be necessary to use very often once you establish a med either is safe or not.
    • maryannlove
      Same problem in Pittsburgh.  Have Hashimato's so been taking Mylan (generic) levothyroxine for many years.  Pharmicist tried to routinely order yesterday and called to tell me it's unavailable.  That I could try to find elsewhere and have script forwarded to them.  Just spent couple of hours online researching.  What a pain for so many of us!  Using http://glutenfreedrugs.com/newlist.htm (which know is old and doubt updated) reminded me that long ago I used to take Sandoz brand.  Just went on their website and appears they no longer make (maybe why switched to Mylan).  Back to square one.  Using chart from glutenfreedrugs.com says for manufacturers I'll list afterwards "Manufacturer doesn't knowingly add gluten, however since they don't do any final testing they won't guarantee it to be gluten-free but it is very unlikely that it is contaminated with gluten."  Might be best I/we can do.  Along with Mylan, those manufacturers on chart are: Lannett (per website still make) and Neopharma (didn't find on their website).  Paloma Health's website says CERTIFIED gluten free are:  Lannet brand of levothyroxine, Nature-Thyroid, Tirosint (expensive), WP Thyroid.  Other thyroid meds that are gluten-free but not certified:  Levoxyl, Synthroid, Euthyrax, Mylan Brand (wish could get), and Armor with a caution contains sodium starch glycate which may contain gluten.  I'll submit Lannett to pharmacist.  If successfull, will share.  
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