Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Related Issues & Disorders

Discussions concerning the various associated health problems, including but not limited to pregnancy, sleep & weight issues.


7,525 topics in this forum

  1. Anonymousgurl
    Lauren M
    • 7 replies
    • 2.8k views
  2. jesscarmel
    • 0 replies
    • 1k views
  3. bluejeangirl
    Kaycee
    • 15 replies
    • 3.3k views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. tbs19
    burdee
    • 3 replies
    • 1.9k views
  6. floridanative
    cause&effect
    • 11 replies
    • 2.7k views
  7. Felidae
    • 6 replies
    • 2.7k views
  8. daltons
    Sophiekins
    • 2 replies
    • 1.8k views
  9. Saz
    BRUMI1968
    • 7 replies
    • 3.6k views
  10. Ksmith
    paw
    • 14 replies
    • 4.7k views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. e&j0304
    • 8 replies
    • 4.4k views
  13. Kyalesyin
    syrceliac
    • 24 replies
    • 17k views
  14. Guest adamssa
    RiceGuy

    Bad Sinus-need Advice

    • 16 replies
    • 4.9k views
  15. ICWendy
    Anonymousgurl
    • 7 replies
    • 2k views
  16. Guest AutumnE
    Guest

    Aneurysms?

    • 2 replies
    • 4.7k views
  17. Ksmith
    georgie
    • 15 replies
    • 15.1k views
  18. Ksmith
    georgie
    • 19 replies
    • 7.2k views
  19. num1habsfan
    • 4 replies
    • 2.9k views
  20. artc98
    mn farm gal
    • 1 reply
    • 5.9k views
  21. sillyyak
    jgross
    • 30 replies
    • 11.5k views
  22. KrisT
    chrissy
    • 14 replies
    • 4.1k views
  23. alexisb
    mommida
    • 3 replies
    • 1.9k views
  24. celiacSuzie
    plantime
    • 1 reply
    • 1.6k views
  25. Mtndog
    AndreaB
    • 6 replies
    • 3.4k views
  26. covsooze
    kiwifruta
    • 11 replies
    • 4.4k views
  27. imagine22
    Nancym
    • 5 replies
    • 7.3k views
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,200
    • Most Online (within 30 mins)
      7,748

    TGE
    Newest Member
    TGE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.