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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Wheatwacked replied to Sarawiththeceliac's topic in Related Issues & Disorders11Untreated celiac
The very reason you take supplements is because you absorb poorly due to the villi inflammation. You need these vitamins to heal and get stronger. Could you give us a list of what you are taking and quantity? Iron supplements cause a lot of people discomfort. Better to get iron and folate from food. Heme iron sources rom animal products like red... -
- Treen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history
Hello. My younger sister was just diagnosed with Celiac disease. My older sister is type 1 diabetic. I suspect my mother had Celiac. I have suffered with gastrointestinal problems my entire life. I want to get tested, but I’m self employed and I purchase my insurance through the ACA marketplace. Thanks to the Big Beautiful (Terrible) Bill, the enhanced s... -
- trents replied to Janet McAlpin's topic in Gluten-Free Foods, Products, Shopping & Medications1Gluten found in Bob's Red Mill TVP using Elisa Technology test
Welcome to the forum, @Janet McAlpin! Using the gluten-free label doesn't mean there is 0 gluten in a product. It means there is <20ppm of gluten according to FDA standards. So, it is not surprising that there is some gluten in this product. What is the sensitivity of the ELISA test you are using? And the NIMA device has a reputation for giving erratic... -
- Janet McAlpin posted a topic in Gluten-Free Foods, Products, Shopping & Medications1Gluten found in Bob's Red Mill TVP using Elisa Technology test
Hello all, I have been using Elisa tests to slowly go through many ingredients in my kitchen to confirm they are gluten-free. Today, after eating Bob's Red Mill TVP, I didn't feel great. I decided to test it and the result found gluten. I am going to test all the Bob's Red Mill products I use regularly with the Elisa tests. I have found them to... -
- Mettedkny replied to Mettedkny's topic in Gluten-Free Foods, Products, Shopping & Medications2crunchmaster Searching for the source - anyone have problems with Crunchmaster crackers?
Thank you for your reply Knitty Kitty (from a fellow knitter) My TSH and T4 is within normal range, and has been checked along with the rest of my bloodwork consistently over the past many years. I am very aware of Hashimoto's since my mom has it (she does not have celiac disease, her other autoimmune disease is diabetes (which I am monitored for but don...
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By Wheatwacked · Posted
The very reason you take supplements is because you absorb poorly due to the villi inflammation. You need these vitamins to heal and get stronger. Could you give us a list of what you are taking and quantity? Iron supplements cause a lot of people discomfort. Better to get iron and folate from food. Heme iron sources rom animal products like red meat, poultry, and seafood with raise your iron. Some blood tests like magnesium, potassium, the body has a homeostasis level that they must be in the nomal range. So don't worry about the ones in normal range. As an example from myself. I started taking 10,000 IU of vitamin D in 2014. It only took a few weeks until I really felt the benefit. I was very deficient. In 2019 my blood level of 25(OH)D was one 47 ng/ml (=117 nmol/L). Two more years to get to 80ng/ml (=200 nmol/L) the homeostasis level for vitamin D. Whuch ones make your side hurt? Perhaps there is an alternate. What vitamins are you concerned about? -
Hello. My younger sister was just diagnosed with Celiac disease. My older sister is type 1 diabetic. I suspect my mother had Celiac. I have suffered with gastrointestinal problems my entire life. I want to get tested, but I’m self employed and I purchase my insurance through the ACA marketplace. Thanks to the Big Beautiful (Terrible) Bill, the enhanced subsidies are set to expire at the end of 2025. The Republican legislature did not renew the enhanced subsidies. I will lose my health insurance at the end of 2025. I’m concerned that if I test positive for Celiac, I will not be able to find insurance coverage due to this pre-existing condition. So, I’m hoping to purchase my own test through WalkInLab (they offer the complete screen for $159). This way I’ll at least know if I have the disease. I won’t tell my doctor since there’s nothing he can do to help me anyway. Then I’ll cut gluten from my diet entirely, which will be easy. I hardly eat at all anymore. I just hope my insurance can’t somehow find out about the results of this screen, if it comes back positive. I’d be paying in full with a credit card. Do any of you have any thoughts or advice? Thanks for reading either way.
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Welcome to the forum, @Janet McAlpin! Using the gluten-free label doesn't mean there is 0 gluten in a product. It means there is <20ppm of gluten according to FDA standards. So, it is not surprising that there is some gluten in this product. What is the sensitivity of the ELISA test you are using? And the NIMA device has a reputation for giving erratic results.
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By Janet McAlpin · Posted
Hello all, I have been using Elisa tests to slowly go through many ingredients in my kitchen to confirm they are gluten-free. Today, after eating Bob's Red Mill TVP, I didn't feel great. I decided to test it and the result found gluten. I am going to test all the Bob's Red Mill products I use regularly with the Elisa tests. I have found them to be quite accurate. I also use NIMA and can't wait for them to be back! I'll keep you posted! Janet -
Thank you for your reply Knitty Kitty (from a fellow knitter) My TSH and T4 is within normal range, and has been checked along with the rest of my bloodwork consistently over the past many years. I am very aware of Hashimoto's since my mom has it (she does not have celiac disease, her other autoimmune disease is diabetes (which I am monitored for but don't have - I "only" have allergies). And yes - I eat iodized salt to protect my thyroid. Good suggestions though and thank you for the links.
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