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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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- tiffanygosci replied to Jhona's topic in Introduce Yourself / Share Stuff27Does anyone here also have Afib
Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes... -
- knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis6Help I’m cross contaminating myself,
I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet. Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down. Sort of like feeding a sick baby easy to digest food instead of spicy pizza. It's important to get the inflammation... -
- klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis6Help I’m cross contaminating myself,
So I should not eat my gluten free bread? I will try the vitamins. Thank you all so very much for your ideas and understanding. I'm feeling better today and have gathered back my composure!- 1
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- knitty kitty replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Taking Probiotics but Still Getting Sick After Gluten – Advice?
Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night. You might want to try that and see if that makes any difference. Several slices of toast for breakfast sounds okay. Just try to work up to the Ten grams of gluten. Cookies might only have a half of a gram of gluten. The weight of the whole cookie is...- advice
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- Clear2me replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications2Gluten free nuts
Thank you, a little expensive but glad to have this source.
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By tiffanygosci · Posted
Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you! -
By knitty kitty · Posted
I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet. Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down. Sort of like feeding a sick baby easy to digest food instead of spicy pizza. It's important to get the inflammation down because chronic inflammation leads to other health problems. Histamine is released as part of the autoimmune response to gluten. High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies. Some foods are high in histamine. Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure. Vitamin D helps regulate the immune system and calm it down. Vitamin D is frequently low in Celiacs. The B Complex vitamins and Vitamin C are needed to clear histamine. Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing. Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are. They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function. Talk to your doctor or nutritionist about supplementing while healing. Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health). Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize. Meats and liver are good sources of B vitamins. Dr. Sarah Ballantyne wrote the book, the Paleo Approach. She's a Celiac herself. Her book explains a lot. I'm so glad you're feeling better and finding your balance! -
By klmgarland · Posted
So I should not eat my gluten free bread? I will try the vitamins. Thank you all so very much for your ideas and understanding. I'm feeling better today and have gathered back my composure! -
By knitty kitty · Posted
Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night. You might want to try that and see if that makes any difference. Several slices of toast for breakfast sounds okay. Just try to work up to the Ten grams of gluten. Cookies might only have a half of a gram of gluten. The weight of the whole cookie is not the same as the amount of gluten in it. So do try to eat bread things with big bubbles, like cinnamon rolls. Yeah, I'm familiar with the "death warmed over" feeling. I hope you get the genetic test results quickly. I despise how we have to make ourselves sick to get a diagnosis. Hang in there, sweetie, the tribe is supporting you. -
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