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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- Pablohoyasaxa replied to Stephanie Wakeman's topic in Coping with Celiac Disease19Is it common to develop a wheat allergy in addition to Celiac Disease?
I feel your pain. Grain and gluten intolerant. Hang in there. This forum is very helpful -
- ElisaL replied to Stephanie Wakeman's topic in Coping with Celiac Disease19Is it common to develop a wheat allergy in addition to Celiac Disease?
IDK how common it is but it does happen. I'm celiac, allergic, and intolerant to the fiber in grains. (Fodmaps) So not only do I get sick from cross contamination, also gluten free wheat statch/fiber, and beauty products with wheat will get me. While I don't stop breathing the full body hives and short breath are not fun. Then once I make through that me... -
- Wends replied to Dora77's topic in Coping with Celiac Disease9Ocd making gluten fears unmanageable. Need advice
Hi Dora77. “Questions I Need Help With” “1. Is it realistically safe to eat food my mom cooks…” YES - you wouldn’t be here if it wasn’t for your mother. Trust she still knows how to take the best care of you in her own way. Mishaps and cross contamination may happen - will happen on occasion, in fact - that’s life. But for the bulk of it as l...- asymtomatic
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- maryannlove replied to KimMS's topic in Gluten-Free Foods, Products, Shopping & Medications12Gluten free thyroid medications
Unfortunately not going to be able to let you know how Amneal is working because I still have almost 3 month supply of Mylan. Had annual appointment with endocrinologist last week (though get scripts for blood work more often) and since was on my last refill, she sent new script to pharmacist. Staying on my Mylan until it's gone. (I tend to build up a...- 1
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- KimMS replied to KimMS's topic in Gluten-Free Foods, Products, Shopping & Medications12Gluten free thyroid medications
Thanks for sharing this! Have you started taking the Amneal? I'm curious how it's going for you. My pharmacy gave me the option of Accord, Macleod or Amneal. I didn't realize that Amneal was formerly Lannett, or I might have chosen that one. However, I did read some anecdotal reports that some people had side effects with Amneal, so I chose Accord. I have...
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By Pablohoyasaxa · Posted
I feel your pain. Grain and gluten intolerant. Hang in there. This forum is very helpful -
IDK how common it is but it does happen. I'm celiac, allergic, and intolerant to the fiber in grains. (Fodmaps) So not only do I get sick from cross contamination, also gluten free wheat statch/fiber, and beauty products with wheat will get me. While I don't stop breathing the full body hives and short breath are not fun. Then once I make through that me and the bathroom become reacquaint. Sigh if I didn't feel so much better with the restrictions on my diet I'd feel sorry for myself. Least it makes for some good jokes about how the gremlin that lives in my gut really hates wheat.
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Hi Dora77. “Questions I Need Help With” “1. Is it realistically safe to eat food my mom cooks…” YES - you wouldn’t be here if it wasn’t for your mother. Trust she still knows how to take the best care of you in her own way. Mishaps and cross contamination may happen - will happen on occasion, in fact - that’s life. But for the bulk of it as long as you’re aware of cc and try to avoid it for the most part, don’t sweat the small stuff! See the gluten free diet as a process. Own the process, Do Not let the process own you! “2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or...
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By maryannlove · Posted
Unfortunately not going to be able to let you know how Amneal is working because I still have almost 3 month supply of Mylan. Had annual appointment with endocrinologist last week (though get scripts for blood work more often) and since was on my last refill, she sent new script to pharmacist. Staying on my Mylan until it's gone. (I tend to build up a supply because after trying a couple of endocrinologists for my Hashimotos, one finally got my thyroid regulated by my taking only six days a week instead of adjusting the strength which had me constantly up and down. Will be forever grateful to her. Apparently high percentage of folks with Celiac also have Hashimotos so all this... -
Thanks for sharing this! Have you started taking the Amneal? I'm curious how it's going for you. My pharmacy gave me the option of Accord, Macleod or Amneal. I didn't realize that Amneal was formerly Lannett, or I might have chosen that one. However, I did read some anecdotal reports that some people had side effects with Amneal, so I chose Accord. I have been taking it for 3-4 weeks and the past 10 days I have developed extreme fatigue/sluggishness, joint pain and some brain fog. I don't know if it is the new levo med, but nothing else has changed. Has anyone else taken Accord levo? Any issues? It seems to fall into the "no gluten ingredients, but we...
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