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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- trents replied to Charlie1946's topic in Related Issues & Disorders38Severe severe mouth pain
From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound... -
- knitty kitty replied to Charlie1946's topic in Related Issues & Disorders38Severe severe mouth pain
Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals. Dietary changes (low carb/paleo) may be beneficial for you. Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet? It's harder to get all the vitamins needed from a gluten free diet. Gluten containing products are... -
- Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders38Severe severe mouth pain
I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant. I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help. -
- knitty kitty replied to Charlie1946's topic in Related Issues & Disorders38
Severe severe mouth pain
A gastroenterologist doing an endoscopy. Biopsies would be taken to be examined microscopically. Do your anti-rejection medications cause digestive problems? -
- Caligirl57 replied to Charlie1946's topic in Related Issues & Disorders38
Severe severe mouth pain
Thank you Knitty Kitty, what type of doctor would diagnose Barrett’s esophagus? What is involved in the testing? Thanks!
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From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense.
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By knitty kitty · Posted
Talk to your doctor about switching to an antihistamine, and supplementing essential vitamins and minerals. Dietary changes (low carb/paleo) may be beneficial for you. Have you talked to a dietician or nutritionist about a nutrient dense gluten free diet? It's harder to get all the vitamins needed from a gluten free diet. Gluten containing products are required to be enriched or fortified with vitamins and minerals lost in processing. Gluten free facsimile processed foods are not required to be enriched nor fortified. So we have to buy our own vitamin supplements. Glad to be of help. Keep us posted on your progress! -
By Caligirl57 · Posted
I’m pretty sure they do. I have been on myfortic, tacrolimus since 2021 for my liver transplant and added prednisone after kidney transplant. I’m going to try to cut back omeprazole to 20 mg a day and then after a week try to stop altogether. Thank you for your help. -
By knitty kitty · Posted
A gastroenterologist doing an endoscopy. Biopsies would be taken to be examined microscopically. Do your anti-rejection medications cause digestive problems? -
By Caligirl57 · Posted
Thank you Knitty Kitty, what type of doctor would diagnose Barrett’s esophagus? What is involved in the testing? Thanks!
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