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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis5Help I’m cross contaminating myself,
So I should not eat my gluten free bread? I will try the vitamins. Thank you all so very much for your ideas and understanding. I'm feeling better today and have gathered back my composure!- 1
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- knitty kitty replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12Taking Probiotics but Still Getting Sick After Gluten – Advice?
Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night. You might want to try that and see if that makes any difference. Several slices of toast for breakfast sounds okay. Just try to work up to the Ten grams of gluten. Cookies might only have a half of a gram of gluten. The weight of the whole cookie is...- advice
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- Clear2me replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications2Gluten free nuts
Thank you, a little expensive but glad to have this source. -
- Xravith replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12Taking Probiotics but Still Getting Sick After Gluten – Advice?
@knitty kitty Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount...- advice
- diagnostic
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- knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis5
Help I’m cross contaminating myself,
I suffer from Dermatitis Herpetiformis, too. Like @Rogol72, I had to cut out all gluten-free processed foods, dairy, oats, and eggs before my skin cleared up. I followed the Autoimmune Protocol Diet. I also supplement with the eight essential B vitamins. (Meat and liver are great sources of B vitamins.) Low levels of certain B vitamins ( B1...
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By klmgarland · Posted
So I should not eat my gluten free bread? I will try the vitamins. Thank you all so very much for your ideas and understanding. I'm feeling better today and have gathered back my composure! -
By knitty kitty · Posted
Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night. You might want to try that and see if that makes any difference. Several slices of toast for breakfast sounds okay. Just try to work up to the Ten grams of gluten. Cookies might only have a half of a gram of gluten. The weight of the whole cookie is not the same as the amount of gluten in it. So do try to eat bread things with big bubbles, like cinnamon rolls. Yeah, I'm familiar with the "death warmed over" feeling. I hope you get the genetic test results quickly. I despise how we have to make ourselves sick to get a diagnosis. Hang in there, sweetie, the tribe is supporting you. -
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@knitty kitty Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better. I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast?
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By knitty kitty · Posted
I suffer from Dermatitis Herpetiformis, too. Like @Rogol72, I had to cut out all gluten-free processed foods, dairy, oats, and eggs before my skin cleared up. I followed the Autoimmune Protocol Diet. I also supplement with the eight essential B vitamins. (Meat and liver are great sources of B vitamins.) Low levels of certain B vitamins ( B12, Thiamine, Pyridoxine, and Niacin) can affect the nerves, resulting in itching and tingling. Niacin especially helps with the itching and healing the blisters. Tallow Balm helps with the healing, too. Zinc and Vitamin A also help with skin health. I've gotten such good results with Niacin and the other vitamins mentioned that I've never had to go on Dapsone.
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